I'd just like to say that this forum is pretty amazing.. I'm 32yrs old & for most of my life I thought I was the only one with a PWS.. I know sounds stupid, but it's not like you run into people with PWS on their face all the time.. I live in a pretty big city (Toronto) and I travel quite a bit, I have never run into anyone with a PWS. Anyways I'm happy I found this forum.
Hello, I am an Italian user. My son and 5 months' born with a vascular malformation of the face between one month and must begin the laser treatment. There 'someone who can advise you if it's worth it or if it is' better to give up and accept this thing in our little treasure? aspect of your advice. sorry but use simultaneous translator
An international charitable
organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment,
provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance
for individuals with birthmarks.
Here you will find information and resources for patients and families affected by hemangioma, port wine stain,
arteriovenous malformation, capillary malformation, lymphatic malformation, Sturge Weber syndrome, Klippel-Trenaunay syndrome, and any other type of vascular birthmark
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.
Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
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consequential or punitive, are hereby excluded even if VBF has been
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