First of all welcome to the group.
As the others have already said I am in the same boat as you. I am 24 years old with facial PWS. If you would like to read my story you can do so at my website hankspws.com Also, I think it would benifet you to go to Geoff Ritchie's website which is www.geoffspws.com
Ok, just for clairafacation on a few things that you said. When the PWS grows, thickens (which I have) it is called hypertrophia (not sure the spelling). The little bumps which you have discribed are called blebs, which can grow into coblestones (which Geoff had before getting them removed).
Being that I live in Nebraska where there is a lot of humitity and I know what TX is like what you are experienceing when you are outside also happens to me. I am convenced that it is the humitiy mostly that causes my sickness being outside for to long. Sun exposure on the other had is not good for any person with PWS or vascular birthmark. Not sure if it makes it worse, but it diffently makes laser treatments less effective.
The blebs will only get worse as you can see on Geoffs website. I strongly suggest doing one of these things. One, go to the resource section at the top of this page and find a new physician that is in TX there is many. Second, if you emial me hank@firstname.lastname@example.org
I can forward your email to a friend if mine that lives in TX with PWS which is also the founder of www.birthmarks.com
. Michael still contiues to get laser treatment and could refer you to a doctor or even his own doctor in TX. PS birthmarks.com has several other adults with PWS on their support group and is like the extended part of the PWS group on this website. Finally, the last thing you can do if you are interested in getting plastic surgery or debulking (the our term of removal of PWS) right now or when you can get an appointment contact Dr. Waner in NYC (contact info in the resource section) and schedual a clinic appointment with him. Geoff and I both have seen Dr. Waner for debulking surgeries. Geoff has had eight and I have had three with him. You can see pictures of his work on our websites. He is expensive, but well worth the results. If he can not treat you nobody in the USA can or will even try. He was the only doctor even willing to touch Geoff and I.
If you would like to talk more you can email me directly. I can not remember if there were any other questions in your message I have vision problems so I can not read for very long times. If there was anything else re ask it on here or email it to me or if you have any additional questions do the same.
Talk to you soon.