If you are at all uncertain about the plan your doctor has, seek another opinion.
It is important that the tests are done. If this is a pws though, I believe the mri should be done with contrast to rule out sturge weber syndrome.
I also am a little puzzled by the small bumps...are they red in color also? What comes to mind is a possible segmental hemangioma vs. a pws. Are you able to post a picture? It might not be a hemangioma...but this early on a segmental hemangioma can look like a pws...but a hemangioma darkens and thickens/spreads and grows very quickly. My son's h. was similar to a pws in the beginning, but by 6 weeks old it was obviously not. Early intervention is important and helpful regardless.
Are you able to post a picture of your daughter? Was the birthmark present at birth?
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)