First of all welcome to the group.
If you have not seen anything on this site about me I am a 24 year old with facial PWS.
I can not agree more with your wife. I have always had the opinion that if someone can not except me because of my birthmark then I do not nee them in my life. They are just negative influence.
I have learned over the years to let the rude comments, pointing, staring, jokes, laughing, and questions be a every day thing in my life. I just let the comments go in one ear and out the other. As for children I turn to education to let them know that there is nothing to be afraid of.
I hope this does not upset you from what I have said already, but I hope what I am about to say will not make it worse.
I have used cosmetic make up twice in my life the last time just a couple years ago. It was given to me by a doctor cosmetalogist. The one down fall the make up did was it made me look like a ghost, and beliave it or not I got made fun of more with the make up then without. Mostly from people that knew me and it was such a big change.
So has your daughter or any of her friends been starting to ask you questions? How do you deal with it if they do?
The reason I ask is my feanca and I both want children after we get married in a few years.
Also, do you have any other health or physical problems that your PWS affects?
My PWS is involved into my top gum, pallet, throat, nose, scalp, eyes (creating vision loss), and hearing loss (involved in ear drum and nerve).
Has your PWS grown at all? (look puffy) The reason I ask is because mine has grown and laser treatment will not help the area that are this thick. I started laser treatment 19 years ago, and last year I had three plastic surgeries. If you would like to see pictures you can see them at my website www.hankspws.com
I hope some of this has help even though not all is positive.
Hope to talk to you soon.