Hi my name is Henry Bartenbach I am twenty years old and I have many Port Wine Stains, and vacular malformations (hemangiomas).
Have you went to see a dermatologest in the area you live in. The doctor I went to back in Nebraska excepted my insurance and my parents only payied 20% of the bill. I live in Nevada now and the doctor out here is different.
I have been going to get laser treatment for about 13 years so I have been there and done that.
Last I Know that two out of a hundred children have sturge- weber syndrom. But there is so many different kinds of sturge-weber.
They have a website if you want to look in to it it is www.sturge-weberfoundation.com
If there is any thing you would like to ask me email me at firstname.lastname@example.org
or just leave me a message in my mail box and I will get back to you.
Talk to you soon and have a great day.