26yrs old - Hemangioma Diagnosis...what to do? - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 11-19-2008, 12:15 AM
nickbar nickbar is offline
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I am sorry, but I have to say this again. They are not true hemangiomas if they appear in adulthood. They are a type of malformation. You many be hearing this from doctors that are not using accurate update terminlogy. I would encourage you to email any of our specialists and confirm. The problem when doctors use the incorrect term... a patient may be confused by the expectations or treatment options for the lesion.
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  #12  
Old 03-12-2010, 06:40 AM
cuteracer cuteracer is offline
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Default hi people

my name is juan and im 25 when i was born i had hemangioma and i had cirgury when i was 4 but after a year it my hemangioma grow more bigger and now i'm 25 and i still have it and i havent found anything to treated completely the only thing i had done that doctors said it was my only choice was a treatment called sclerotherapy wich they inject alcohol into the hemangioma and afeter a while it reduses the size of it my hemangioma is pretty big its on my neck and chick and on the back of one of my ears and when i do excersise it gets bigger too and hard but i'm guessing for smaller hemangiomas the sclerotherapy would work good and maybe cure it completely if u want more info on the treatment and my doctor email me at toromember2008@live.com and sorry about my writing is not good jeje and if anyone knows about any other possible treatment let me know too thanks
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  #13  
Old 03-12-2010, 12:23 PM
missy missy is offline
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Where are you located? There may be newer treatment options that could help you.

Missy
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  #14  
Old 03-15-2010, 10:29 PM
cuteracer cuteracer is offline
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i'm located in los angeles california do u know about any other treatments ? missy?
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  #15  
Old 03-15-2010, 11:12 PM
nickbar nickbar is offline
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Juan. Please email Dr. Gregory Levitin. You can do so thru the ask the expert on the main page, or I would be happy to forward your email to him. He practices out of L.A.
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  #16  
Old 12-13-2012, 07:55 PM
KatybbKatewalters KatybbKatewalters is offline
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There seems to be a train of thought that pregnancy can stimulate development of AVM's, but I am struggling to find much research on this. I have a lump on my foot that has been developing over the last 5ish years, that has been recently diagnosed as an AVM/hemangioma. I was wondering what kick started its growth, I am 32 so well past puberty and have never been pregnant. It dawned on me that I started taking my current pill (Yasmin) around the same time. I have been other pills for many years, but Yasmin is a very high dose of drospirenone (synthetic oestrogen I think) which I take to help acne. When I look into side-effects of Yasmin, there are concerns about hepatic AVMs but no mention of development elsewhere.
Rondosa, it s interesting you mention polycystic ovaries - as this would suggest abnormal hormone levels. Do you notice that fluctuation in size has any correlation with your menstrual cycle?
As a baby, I had a very large hemangioma on my right calf. This lump is on my left foot. I wonder if there is a link? Am I likely to discover others as I get older? Again, I can find little research on multiple incidences.

Interesting stuff - I would like to know if I should stop taking my pill, my lump is gradually getting bigger... I doubt my GP would have the faintest idea, he initially told me it was hard skin.
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  #17  
Old 08-20-2013, 05:22 PM
johneastjr1234 johneastjr1234 is offline
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I just found this forum. My name is John I was born with a hemangioma that was half size of my body. Although the mass was removed thru several surgies. I still have break outs now and again. As of right now I am scheduled for another surgergy. this will be surgery #21 for me.
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