Intramuscular Hemangioma in calf -19 y/o - Page 3 - Vascular Birthmarks Foundation Forum
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  #21  
Old 01-19-2014, 03:05 PM
rc_roy rc_roy is offline
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Default Intramuscular hemangioma in calf!

I am so glad I found this! When I was 19 years old I was diagnosed with intramuscular hemangioma in my right calf..At first it wasn't too bad but I still had to wear compressed socks everyday. I am now 26 and the past few months the pain has been unbearable! This is the second time that it rips and bleeds, my leg has been going numbs since the bleeding is putting pressure on a nerve. I have been waiting for 5 years to try embolization (2 years for a consult, 3 years for the actual appointment) It doesn't look like it's gonna be anytime soon..Now I went to see this other specialist and he wants to do the surgery to remove it, and I was wondering if anyone has been through it? If so, how bad is the surgery? Also the 2 first specialist that I've seen said they didn't want to operate because it was too dangerous, but now this 3rd one said he has done it plenty of times just not in the leg..Oh and one last thing, other than wearing the compressed stockings, is there anything else that can help with the pain???
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  #22  
Old 01-19-2014, 03:06 PM
rc_roy rc_roy is offline
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Also, I do realize this post is old, but I figured I'll give it a try anyway!
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  #23  
Old 01-20-2014, 03:36 AM
smurph smurph is offline
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Hi there!
I would suggest you email Dr. Robert Rosen. You can go to the "Ask the Expert" page here on this website. Perhaps you can send a photo too. He is an expert in the field of vascular lesions of the arms and legs and he may be able to give you some insight and suggestions. What you have does not really sound like an infantile hemangioma because hemangiomas grown quickly in the first year after birth and then involute slowly for sometime up to 10 years. What you are describing is different, and I would get another opinion especially since you have been getting conflicting opinions already. Are you in the U.S?
Shannon
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