3 month old with H on scalp - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 12-17-2007, 06:24 PM
pichpaw pichpaw is offline
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just one more thing re the GA. the anesthesiologist told me as i nervously handed my baby off to him that there was a bigger chance of something bad happening on the car ride over to the hospital than due to GA. so really GA is very very safe. keep us posted.

zoe
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  #12  
Old 01-21-2008, 02:29 AM
annalbc annalbc is offline
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She's adorable! So, your surgery date is close! Our daughter had a scalp H removed back in sep. when she was 6 1/2 months old. It went well, she was such a trooper! I posted a new thread with before/after pics. Her's was ulcerated as well. We are pleased with the outcome besides some widening of scar tissue. Her hair will most likely cover most of it anyways.
Keep us posted on how surgery goes!

Anna, mom to Emily, 11 months old, surgery for scalp H removal 9/07
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  #13  
Old 01-24-2008, 07:19 PM
MOLLIE MOLLIE is offline
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Jen,
I'm just curious, did all three Plastics Surgeons recommend surgery or treatment? The plastic surgeon we saw today said that if it had not stopped growing then there was a chance for the H to grow back. I am just confused, my daughters H is a little lower on the forehead than Kayleigh's and I am scared that if we wait, it will grow larger and have an even bigger scar because of the damaged skin around it. What led to your decision on which doctor to use for the surgery?
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  #14  
Old 01-31-2008, 05:55 AM
L Musil L Musil is offline
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Default 4 month old with Hemangioma on soft spot on head

I was born on September 28th @ 5lb 10 oz a baby girl. I had a red spot on the top of my head over my soft spot that everyone said was a birth mark. Yep, this makes me special. However, for the first few weeks there were no noticeable concerning changes and then at 7 weeks, this has grown and grown and grown.

I am now 4 months old and now weight about 14 lbs. It was recommended that I visit a Dr. Wolfe at childrens hospital in Miami, which I did, and now they want me to have surgery when I am 6 months old. However, I am concerned that this is still growing and want to know if I am seeing the right Doctor and do I have the correct treatment. I am not concerned about how I look, because I will grow up to be confidant in how God made me, but I do have concern that this is growing so large and is over my soft spot where my brain tissue is growing. My parents are very concerned and I know they really want to do whatever they can for me. Any recommendations and why should I wait until 6 months?

Thank you, Holly
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  #15  
Old 01-31-2008, 11:15 AM
lpm lpm is offline
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Holly:

You are one precocious kid - my 12 year old can't write that well.

How large is the hemangioma? Have you been on steroids to try to control growth? Have you looked at some other websites, which show examples of similar hemangiomas and involution (I have seen some photos of hemangiomas in that location that have involuted very well).

I am glad to see that the doctors are being aggressive, but even six months is quite early for surgery if the hemangioma is not problematic. Also, when my youngest had surgery, she had the smaller hemangioma (on top of the head) removed in addition to the larger one on the face. The one on top of the head never exhibited aggressive growth, but it "came back" about 3-4 months after surgery (surgery at 11 months). You may want to discuss this with the doctor, as your surgery is scheduled when the hemangioma may still be growing.
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  #16  
Old 01-31-2008, 06:30 PM
MOLLIE MOLLIE is offline
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Jen,
Just wanted to let you know that we are praying for Kayleigh and your family. I hope surgery went well and she gets well soon! Let us know how you guys are doing when you get a chance.
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