I have an 11 month old daughter w/ a facial PWS. She sees Dr. Francis who operates out of Children's hospital. We LOVE her. We also had a consult w/ Dr. Hornung. Please email me and I will tell you all about our experience if you would like.
Our daughter is 14 months old and has a large port wine stain on her face. She has been going to Childrens hospital in Seattle. She has had two treatments with Dr Hornung. Dr Hornung has gone to Everett Clinic but still does laser treatment at Childrens. Where in Wa are you located?
An international charitable
organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment,
provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance
for individuals with birthmarks.
Here you will find information and resources for patients and families affected by hemangioma, port wine stain,
arteriovenous malformation, capillary malformation, lymphatic malformation, Sturge Weber syndrome, Klippel-Trenaunay syndrome, and any other type of vascular birthmark
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.
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IS" and without warranty, express or implied. All implied warranties
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