I'm so confused!! - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 02-27-2008, 06:45 PM
AubrieB AubrieB is offline
Member
 
Join Date: Feb 2008
Location: Huntsville, Alabama
Posts: 38
Default I'm so confused!!

I am so confused!! I talked to Dr Waner about my 4 month old son's hemangiomas and he suggested that the one on his scalp be removed due to the ulceration and the one on his nose should be lasered. He told me to contact Dr Buckmiller because she was closer. We battled with the insurance and they finally agreed to cover it. I talked with her Dr Buckmiller's nurse and the Dr recommended steroid injections and laser for the one on the scalp, but nothing for the nose.

The one on his scalp had started to heal, but is turning black again and starting to ulcerate all over again. I swear, I feel like everytime I take 1 step forward, I take 2 steps back.

I really want the one on his scalp removed because it is so painful and just keeps ulcerating.

I know that Dr Buckmiller is a great Dr, but if she doesn't fall in line with what I want and Dr Waner does, do I just bite the bullet and go to NY?
Reply With Quote
  #2  
Old 02-29-2008, 07:24 PM
yury_ramirez yury_ramirez is offline
Junior Member
 
Join Date: Feb 2008
Posts: 7
Smile

We Just Fcame Back From Ny, Dr.waner Lasered My 5 Week Baby Girl Its Been 2 Days And It Already Looks Great. Im From Houston Dr. Waner Asked If I Wanted Dr. Metry In Houston To Continue The Process Here, But We Decided To Keep Going To Ny. His Work Is Amazing, His Very Kind. The Trip Is Well Worth It.
Reply With Quote
  #3  
Old 02-29-2008, 07:28 PM
Ariella Ariella is offline
Junior Member
 
Join Date: Feb 2008
Location: NY
Posts: 15
Default

I say if you can afford it go with Dr. Waner he is the best.. Love him and his team!! Very supportive and caring By the way Yury were u in Beth Israel Hospital on Wednesday???
Reply With Quote
  #4  
Old 02-29-2008, 10:11 PM
AubrieB AubrieB is offline
Member
 
Join Date: Feb 2008
Location: Huntsville, Alabama
Posts: 38
Default

Quote:
Originally Posted by Ariella View Post
I say if you can afford it go with Dr. Waner he is the best.. Love him and his team!! Very supportive and caring By the way Yury were u in Beth Israel Hospital on Wednesday???
Nope, wasn't me at Beth Isreal.

I did talk more with the Dr Bickmuller's nurse and they want to laser the ulcer to try to heal it and also do the steroids shot to try to stop the growth and maybe shrink it. Then she will probably take it off at 10 months because it lessens the rick of it coming back. I guess I can understand that.
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Port wine stain on left leg, and Confused garcia03 Port Wine Stain Help and Resources 5 11-14-2009 10:55 PM
HELP - Confused by Insurance! What is or isn't covered?? Frustrated BriellesMum Help and Resources for Hemangiomas 4 05-11-2009 11:27 PM
Confused About Ins. Coverage! Cinderella22 AVM Help and Resources 1 07-09-2008 07:49 PM
Confused mom kharris18 Help and Resources for Hemangiomas 9 05-28-2008 08:56 PM
PWS, so confused nanalee Port Wine Stain Help and Resources 2 10-06-2006 02:01 PM