Hello, I'm new to this. I have a 7 month old baby girl Shelby who is in the process of what we thought was a hemangioma but now is probably some type of vascular malformation that goes in to her pelvic area, spine and bladder. Anyone with a similar situation? Is this the right discussion place for me to be?
I would like to invite you to post on the MSN support group (we will be relocating our site soon, but we are still at http://groups.msn.com/vascularbirthm...on=get_threads
for now. We have members there that are dealing with Vascular malformations that can offer information and support as well.
Let me know if there is anything I can do to help.
VBF Director of Family Services
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An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.
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