5 week old hemangioma above lip - advice? In AZ... - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 01-12-2009, 06:46 PM
mrssuperspy mrssuperspy is offline
Junior Member
 
Join Date: Jan 2009
Posts: 28
Default 5 week old hemangioma above lip - advice? In AZ...

Hi all,

Our little girl has an H above her lip on the left side. It is growing quickly, to me, and her ped is sending us on to get advice/treatment. Tomorrow we see an ENT, and I have made an appt with Dr. Goldberg in Tucson for Friday.

Does anyone have a child with an H in this location? Has anyone seen Dr. Goldberg?

I was very confident in getting this treated, but now I'm an getting nervous. The woman I spoke with at Dr. Goldberg's office said that if he wants to treat they will do it that day. That kind of bothers me. I like to think things through and maybe even get a second opinion. Would this bother anyone else? Would you treat with him at the first appt? Is this how other Dr's approach this sort of thing?

Also, any other docs you've seen in AZ?

If you'd like to see her, my little girls pics can be found on our family blog - http://www.awindowoflife.blogspot.com

Thanks so much, I appreciate all your advice!
Reply With Quote
  #2  
Old 01-13-2009, 01:12 AM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default

Hello

If you find that you don't want to have treatment during the first appt. that is up to you when you arrive. I would see what Dr. Goldberg has to say and why. There are reasons for treating right away... if rapid growth is occuring a doctor might feel it is best not to waste anymore time. Arm yourself with questions.... and keep in mind...this is your baby and you are the "customer"...it is your choice and your right to know everything, to have the options and opinions available.

I would also like to invite you to join the MSN-VB group we are in the process of building a new site, but for the rest of the month we'll still be here:
http://groups.msn.com/vascularbirthm...on=get_threads We have other families with similar h. and experiences.

Let me know if I can help you with anything. I do have a list of questions that might help you get started. Feel free to email me.
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #3  
Old 01-20-2009, 05:07 AM
madison'smom madison'smom is offline
Junior Member
 
Join Date: Apr 2007
Posts: 23
Default

I assume you have already had your appointment... how did it go?
My daughter Madison has a large hemangioma that encompasses the same general area. Hers starts under her eye and extends down to her upper lip on her right side. I live in Colorado and we were told that they wouldn't do anything for her until age 4 by 2 specialists in Denver. Finally at the age of 1 we found Dr. Waner in NYC and decided to start treatment for her. She is now 22 months old.
I can send you pictures of my daughter and share our story with you and try to answer any questions you have if you would like.
Stacey
Reply With Quote
  #4  
Old 01-20-2009, 01:49 PM
mrssuperspy mrssuperspy is offline
Junior Member
 
Join Date: Jan 2009
Posts: 28
Default

Please do share your story - thanks! My email is the garza family 5 at msn dot com
Reply With Quote
  #5  
Old 01-21-2009, 12:30 AM
madison'smom madison'smom is offline
Junior Member
 
Join Date: Apr 2007
Posts: 23
Default

The email address you gave didn't work.
Stacey
Reply With Quote
  #6  
Old 01-21-2009, 02:01 PM
mrssuperspy mrssuperspy is offline
Junior Member
 
Join Date: Jan 2009
Posts: 28
Default

I'm so sorry! I tried to be all "safe" and I guess it didn't work. LOL

Here it is again: thegarzafamily5 @ msn. com -No spaces of course!
Reply With Quote
  #7  
Old 01-21-2009, 04:13 PM
madison'smom madison'smom is offline
Junior Member
 
Join Date: Apr 2007
Posts: 23
Default

Sorry I missed "the". I will send you an email.
Stacey
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Daughter has a hemangioma on lip and in mouth. I need advice! tedg1979 Help and Resources for Hemangiomas 16 04-14-2011 04:47 AM
Seeking Advice for Eye Hemangioma NJW12 Help and Resources for Hemangiomas 4 01-29-2009 02:01 PM
5 week old has Hemangioma in Liver HELP!! pk8183 Help and Resources for Hemangiomas 10 07-30-2008 06:58 AM
10 week old with 8 hemangiomas on trunk / legs / arms - need advice please! kaylan_edgcumbe Help and Resources for Hemangiomas 1 07-21-2008 08:30 PM
Forehead Hemangioma Excision-Next week with Dr. Waner! EJsMommy Help and Resources for Hemangiomas 4 05-06-2008 06:27 AM