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Old 03-23-2010, 01:02 PM
momof3inpa2009 momof3inpa2009 is offline
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Join Date: Dec 2009
Location: PA USA
Posts: 109

mumof2--same thing here....when others see our daughter's "bumpy" (as we call it) they say they see a huge difference but some days we don't see it. I also feel as though the results are a bit slow. Like at first it seem fast and dramatic but now it's a bit slower process.
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Old 06-15-2010, 01:31 PM
dr.satish kumar dr.satish kumar is offline
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Join Date: Jun 2010
Posts: 1
Question Portwine stains in adults

Has any one heard of effects of Proponolol on adults with portwine stains?
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Old 06-15-2010, 02:34 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,714

I have never heard of it being used for port wine stains at all, only hemangioma.

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Old 03-13-2013, 12:35 PM
tyler12 tyler12 is offline
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Join Date: Mar 2013
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Default Birthmark

Hi there i am new to this site so not sure how it works but anyway i am 31 and i have a risen hemangioma which is covering my face anyway when i wa born and the doctors finally realized what i had it was grown quite a bit by then an i have had lots of surgery over the years and stopped when i was 13. But i had never heard of propranolol but i am wondering if it may work on me now at my age and obviously because mine is fully grown and to be honest i don't know what to do from here. I know some people may so just live with it but hey it's easy for people to say, Also i have asked for skin graft but i was refused by my old surgeon as of all the risks so i'm now on plan B, Anyway if anyone could please answer and give me some kid of advice then that would be great also can you see your doctor for propranolol or would i need hospital visits.
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Old 03-13-2013, 01:48 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,714

Hi and welcome!

Hemangioma is a term that refers to a birthmark that only babies have. They resolve in some way or other by puberty.

If you have a vascular birthmark as an adult, it is either a port wine stain or vascular malformation, but not hemangioma.

Many doctors still use the terms interchangeably, but they are not the same thing.

That medication would not work for a vascular malformation, though it does work in some children for hemangioma. There is no evidence that it would work for you, though, and I don't think any physician would prescribe it.

Where are you located? Perhaps you could see a specialist that does have experience with vascular malformations in adults.

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Old 12-18-2013, 12:23 PM
That little boy That little boy is offline
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Join Date: Dec 2013
Posts: 1
Default I was born with it on my Tongue

Originally Posted by Dawn and Baby Presley View Post
WOW we are on the Propranolol treatment as well...where do you live?
We are in New Brunswick Canada, and there are only two patients in the whole province on it us and one other little boy!
I mentioned it back a month ago on this site hoping also to help someone!!
Hi i am now 46 years old and honestly nothing was ever seen like it here in New Brunswick. Dr Tan had sent me for numerous categorizations to try and stop the cycle of constant retains blood and swelling. I lived well into my teens with it and then it got to the point where it was either going to go to the tip of my tongue and dissapear or down my throat into my organs luckily I am still here.
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