hemanginona eye - Vascular Birthmarks Foundation Forum
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  #1  
Old 02-11-2015, 01:08 AM
deborah1957 deborah1957 is offline
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Default hemanginona eye

Hello my 2 month old was DX with possible deep hemanginona of eyelid. Has anyone else had this early ..did u start propanol any issues?? Did u do any imaging ?
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Old 02-11-2015, 02:52 PM
missy missy is offline
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Hi and welcome!

How scary! I know there are parents around here who are dealing with this same issue and they will chime in soon. Has your baby been prescribed propranolol yet?

Missy
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Old 02-16-2015, 10:22 PM
Ksusko Ksusko is offline
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Hello. We used propranolol for my sons hemangioma and it was a godsend and miracle. If you would like to discuss further, send me an email at kas434@gmail.com and I can share our experience. The propranolol stopped the growth and then he had two laser treatments and it is totally gone. Happy to share before and after pix to ease your mind. It was such a stressful time, but everything worked out and will work out for you too.
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Old 03-22-2015, 03:42 AM
deborah1957 deborah1957 is offline
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Hi good evening,
Thank you both for responding. Our sweet pea was staemrted on propranolol about 2.5 weeks ago and we noticed improvement almost immediately. She has some trouble swallowing it as she is so little and only knows to nurse poor little bug. Has any one experienced any side effects ? She has had increase in BM although she has been stable and doing well. Every and all info is appreciated and helpful
Candice
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