Will my child's upper lip hemangioma go away on its own??? - Vascular Birthmarks Foundation Forum
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  #1  
Old 02-26-2015, 07:56 PM
Tammiriesner23 Tammiriesner23 is offline
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Default Will my child's upper lip hemangioma go away on its own???

My son was on propanonal for 6th months during the hemangiomas frowning phase. It helped some with shrinking. He is now 17 months and I see no change. I was just wondering if anyone has had their child lip hemangioma go away on its own without a surgical procedure
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Old 02-26-2015, 09:01 PM
smurph smurph is offline
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Hi there! My daughter had an upper lip hemangioma that sort of extended up into the skin between her lip and nose. This was 10 years ago so the treatments were a bit different back then. She did about 10 months of oral steroids and then we waited until she was about 5 to see how much it would got away on it's own. It did fade quite a bit (especially from age 1-2) but after that the fading pretty much stopped. She had surgery at age 5 to fix up where her ulceration had been and then she had 2 laser treatments to take care of the skin under her nose. SO, it is a little difficult to say at this early stage what you may want to do with your son's hemangioma. Did it ulcerate at all? How large did it grow? Did it change the shape of his lineline at all? Is it extended into the skin or just on the lip? These are all questions that may affect whether or not further treatment is warranted. Nevertheless, it may just take some wait time to see how things play out. That is one of the hardest parts I think- is waiting it out. But sometimes it is the best thing. Every hemangioma has a "mind" of its own. Here's my daughter's album. You may find it helpful as a reference but your son's may not be similar. Let me know if you have any questions!


https://www.facebook.com/shannon.hoh...02383&t ype=3

Shannon
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Old 03-03-2015, 12:08 PM
MatthewM MatthewM is offline
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Default de-bulking surgery

Hi

My son had been on propranolol since he was diagnosed with upper lip haemangioma at 2 weeks of age. The medication worked well on the surface component shrinking the red juicy lump right down. However, not so for the deep component underneath the upper lip. He had a de-bulking op just over 2 weeks ago and we are feeling doubtful about whether it was successful. Much of the bulk has been excised however there is still a small bit left. We are rather anxious and feel so alone in this journey. At the initial consultation with the specialist we were advised that he would need 2 ops. One to remove the bulk and the other to reconstruct the lip. But now I feel as though more de-bulking would have to occur. We have a follow up appnt next week so keen to find out exactly what is going on. Depending on how it goes, we may consider going elsewhere. Any recommendations for specialists in Perth? I know Melbourne and Sydney have special centres for haemangioma cases.
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Old 03-04-2015, 03:19 AM
smurph smurph is offline
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Quote:
Originally Posted by MatthewM View Post
Hi

My son had been on propranolol since he was diagnosed with upper lip haemangioma at 2 weeks of age. The medication worked well on the surface component shrinking the red juicy lump right down. However, not so for the deep component underneath the upper lip. He had a de-bulking op just over 2 weeks ago and we are feeling doubtful about whether it was successful. Much of the bulk has been excised however there is still a small bit left. We are rather anxious and feel so alone in this journey. At the initial consultation with the specialist we were advised that he would need 2 ops. One to remove the bulk and the other to reconstruct the lip. But now I feel as though more de-bulking would have to occur. We have a follow up appnt next week so keen to find out exactly what is going on. Depending on how it goes, we may consider going elsewhere. Any recommendations for specialists in Perth? I know Melbourne and Sydney have special centres for haemangioma cases.
I just wanted to let you know that my daughter also had a debulking surgery for her upper lip hemangioma. I expected to see the results right away and I remember feeling really worried about 2 weeks later that it really hadn't helped that much. But her surgeon reminded me at her follow up appt that sometimes it can take several weeks for the final result to show...it takes a while for everything to settle down and heal in there. I'm not so sure in terms of specialists in Australia. but I just wanted to let you know that it may take more time for you to see the outcome of the surgery. Hope that helps!
Shannon
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Old 03-04-2015, 02:22 PM
ahcarroll ahcarroll is offline
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Can you guys tell me a little more about this de-bulking surgery. As you know Shannon, my daughter has been getting laser. Its done wonders for the redness but not for the thickness. Is this something we will probably have to do as well??
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Old 03-05-2015, 02:27 AM
smurph smurph is offline
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It's hard to say- Faith's was mostly done because of the ulceration scar she had and so her lip was uneven with like a "divot" So I think the surgeon basically removed the scar tissue and that made her lip more balanced/symmetrical. So I think it really depends on your daughter's lip and that is something that you can certainly talk to her her doctor about.
Shannon
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Old 03-05-2015, 11:16 AM
MatthewM MatthewM is offline
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Thanks for your response Shannon. It is so nice to hear from someone who has gone through it. I saw the photos of your daughter. Everything worked out so well for her. It gives me hope. Matthew's haemangioma was larger though so I just hope that we can also see the same results. I will give it more time but need to have a plan in case I don't see the expected results.

As for the query re the surgery, the paed dermatologist decided that since the haemangioma had been in the plateau stage for quite some time without retracting and with kindy approaching, it was appropriate to proceed with surgery.
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Old 03-06-2015, 12:39 AM
smurph smurph is offline
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That makes sense...we did Faith's surgery right before Kindergarten too. Good luck! Let us know how everything goes!
Shannon
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