AVM's of the extremities - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 03-30-2004, 03:39 PM
christielee21
 
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Default Re:AVM's of the extremities

hi! i have a VM that is mainly concentrated on my left foot, but scattered up my leg and small isolations throughout my body. i'm 18 and haven't had a lot of great medical attention, but if you want to talk let me know.
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  #12  
Old 03-31-2004, 04:08 AM
Lisa_99 Lisa_99 is offline
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Join Date: Mar 2004
Location: Madison MS
Posts: 48
Default Re:AVM's of the extremities


Christie,
Welcome!

i'd like to know more about your experiences. have you been diagnosed with KT or PWS.?? Where are you located ? what doctors are you using for any direction?

LIsa
Mississippi mom of 14 yr old KT patient.
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  #13  
Old 04-05-2004, 02:00 AM
christielee21
 
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Default Re:AVM's of the extremities

Hi Lisa.

i haven't been diagnosed with either of those. i just have "multiple venous malformations involving mainly left leg, and few scattered satellite lesions."

i'm from missouri, and have seen maybe 2 doctors. my family physician thinks "my foot should be in a museum." reassuring. i had a doctor from dermotology look at it (she gave me the diagnosis) at Children's Mercy Hospital in Kansas City. she wanted me to get an MRI and go from there... but i'm in college and don't have any extra spending $ for some fun w/ imaging.

so.. i'm pretty much stagnant right now with any progress. that's the story of my life though, it has never been looked at as any big concern. (though it's spreading..)

if interested, you can read more about me under my post in the Teen and Youth section. i think this is the link--
http://www.birthmark.org/board/index...y;threadid=369

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