If you live in the area of Baltimore, you might be interested in getting treatment with ethanol gel (instead of ethanol liquid which is the actual standard treatment). It's been used in Europe for awhile, with good results, and it is now being tested at John Hopkins. For people without insurance, it can be free (even transportation within a 300-mile range can be reimbursed). Of course, people from other areas are also welcome to apply for this treatment.
The gel is easier to use in that the flow can be controlled better to keep the ethanol in the VM and out of the draining veins. It also seems to be staying in the VM and treating it better with less recanalization so far.
Previous work in Europe shows that it takes about half as much to treat same size VM, safety looks good, efficacy looks good.
Contact information: Dr. Sally Mitchell 410-614-2227 or 410-502-6611, Gina Robinson study coordinator, 410-502-3628.
Professor of Radiology, Surgery, & Pediatrics
Director, Pediatric Interventional
Director, Vascular Anomalies Interventional
Assoc Director, Image Guided Interventional Procedures
Assoc Section Chief, Vascular and Interventional Radiology
Johns Hopkins University School of Medicine
600 N. Wolfe Street, Blalock 545
Baltimore, MD 21287
Posted by Lise Daoust