PWS - MRI - hospital intend to use no dye - is that ok? - Vascular Birthmarks Foundation Forum
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Old 05-23-2009, 11:36 AM
justk2006 justk2006 is offline
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Join Date: May 2009
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Default PWS - MRI - hospital intend to use no dye - is that ok?


Our newborn has a PWS (early days but pretty certain) and the hospital (here in the UK) have booked him in for an MRI - for SWS diagnosis i assume due to the marks location.

I was surprised that they seemed to be going against the NHS/Great Ormond street advice that a gadolinium contrast agent should be used - and instead intend to use no dye.

Any thoughts on this ? Is it a lower quality investigation? What reasons might they have for not using a dye and are they valid?

All help appreciated

Cheers, Karl (newbie)
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Old 05-24-2009, 12:58 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078

I am not sure, but I've only heard of contrast being necessary. I would encourage you to mail Anne Comi the SWS expert for VBF. You can find her information on the main page of this website.
Keep us posted.
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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Old 05-24-2009, 08:49 AM
justk2006 justk2006 is offline
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Default Thanks Corrine - have send message -- no text

no text in body
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