I'm one of those parent internet doctors that real doctors hate
I've ended up here after self diagnosing my child thanks to clueless doctors.
When our daughter was born, one of her toenails was slightly bluish and the toe was a tiny bit to large so we questioned our family doc, and pediatrician, and they both said it is just a vein too close to the surface.
Fast forward 3 years later with no symptoms and then just last week the toe and about a 1inch square portion of her foot surrounding the toe has become swollen and bluish but is completely pain free.
After reading the internet I first thought it was congenital lymphedema but I feel VM is more likely the diagnosis due to the bluish hue.
Off to the doctor we go and again they are clueless and tell us not to worry (put some ice on it
)? So I would like to ask a few of you experienced patients and parents some questions if you don't mind.
1 - Do you agree it sounds like a VM? If not, any suggestions?
2 - Any recommendations on a VM specialist in Toronto that can give a proper confirmed diagnosis and treatment plan?
3 - What can I do as a parent to limit the swelling? Do any of you use compression garments? Does drainage massage help swelling similar to lymphedema?
4 - Medical websites seem to suggest that treatment is very effective (sclerotherapy with pure alcohol) but from reading this forum I get the opposite impression. Are there any true success stories out there?