Any Advice Welcome
Today we went to the dermatologist that diagnosed my daughter's CMTC. He wants her to be seen by a pediatric vascular specialist, pediatric dermatologist, pediatric orthopedic specialist,and radiology. We are not sure what to do now because the only pediatric dermatologist isn't located near the clinic that he thinks we should go to for everything.
He is recommending Vascular Anomalies Center at Children's Hospital at the University of Minnesota. Does anyone know anything about this place? He didn't know anything about it and hadn't sent any patients there. He just thought that their services were probably the best fit for our needs as a family in relationship to living in South Dakota.
He said we could also go to Rochester but from what he knew they didn't have a pediatric vascular specialist. Does anyone know anything about services available in Rochester.
He also told us to get ready for a fight with insurance. He said they aren't going to want to pay for any of this. I have already fought with them for just about every test she has had run.