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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > CMTC

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  #11  
Old 01-14-2010, 02:10 PM
abatie abatie is offline
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We are doing well. Becca has done pretty well out of her routine considering routine is so important for her. The worst part so far has been the blood work because they struggled to get any and so it was rough to watch. Friday will be tough because she can't eat for four hours before the echo.
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  #12  
Old 01-14-2010, 09:13 PM
abatie abatie is offline
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Today was a terrible day and we got nothing accomplished. I will be looking for a different opthomologist for her because what we experienced today was not good. They never got a pressure (except one when she was screaming) and told us in the same sentence, "she will need glasses soon and her eyesight is perfectly normal". I am assuming the normal was because he isn't seeing signs of Glaucoma. I will post after tomorrow's appointment.
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  #13  
Old 01-16-2010, 04:24 PM
abatie abatie is offline
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We all had a really tough day Friday. The cardiologist found three holes in Becca's heart. We were not prepared for the news because we thought that this was just a really precautionary test and the doctors didn't think they would find anything. Does anyone else have experience with heart defects and CMTC?
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