help for 20 mos old - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 05-27-2010, 02:37 AM
concernedmama concernedmama is offline
Junior Member
 
Join Date: May 2010
Posts: 23
Default help for 20 mos old

Hello
I am new here and tried to post earlier but I don't think it worked. I have a 20 month old girl with a h on her forehead. It is right in the middle of her head on her hairline and so far we have taken the wait and see approach. It is about the size of a cherry and raised and still red (although not as red as it once was) I have seen a specialist (Dr. Krol in Portland) and he suggested surgery. I'm worried about the scar being right on her hairline.I'm wondering about propanol use...has anyone older and out of the growing stage? He has not used it in older children....
Would love any feedback. Also am very interested in the topical ointment used....any info on that would be wonderful.
For those of you who elected to wait....at what point did your child's h become less noticeable. We are undecided at this point about what to do.
Reply With Quote
  #2  
Old 05-27-2010, 11:27 AM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,726
Default

Hi and welcome!

If you could post a photo, more people will give you better feedback.

Usually, surgery results are good. I can't think of one case where the parents weren't pleased and relieved.

Missy
Reply With Quote
  #3  
Old 06-01-2010, 01:34 PM
EFMama EFMama is offline
Member
 
Join Date: Apr 2009
Location: Canada
Posts: 45
Default

Sounds very much like my youngest's H - except his is dead center on his forehead, down from the hairline! At 17 months, we started to see signs of involution - some gray patches. Now, at 22 months, it's definitely getting smaller and parts of it are starting to get pale and look more flesh toned. We're being followed by a pediatric plastic surgeon and so far it's been the wait and see approach. The specialist did say that once it had involuted, he might need minor corrective surgery to fix any left over sagging of the skin.
__________________
Me - Aimee - Spot on liver
Elliot, 9/20/06 - H on back (nearly gone)
Felix, 7/28/08 - H on forehead (in involution)
Taking the 'wait and see' approach, for now.
Reply With Quote
  #4  
Old 06-03-2010, 02:04 PM
concernedmama concernedmama is offline
Junior Member
 
Join Date: May 2010
Posts: 23
Default

Missy
I tried to post a photo but it didn't work...said it was too big. Could you help me with this? Also, is there a way to contact individual members? I'd love to contact the man in the UK who had the 5 year old with timolol and propanol use but haven't seen him post in awhile. I completely understand the need for privacy etc...just wondering.
Reply With Quote
  #5  
Old 06-03-2010, 10:37 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,726
Default

If you email the photo as an attachment to contact@birthmark.org, I can post it for you.

Who is the member you'd like to contact? If you give me his username, I'll see if I can get in touch.

Missy
Reply With Quote
  #6  
Old 06-05-2010, 06:33 AM
concernedmama concernedmama is offline
Junior Member
 
Join Date: May 2010
Posts: 23
Default

thanks Missy. I will try to send photos tomorrow. The user I wanted info from was briankeay from Scotland. Aimee, do you have photos posted somewhere? Was your 3 year olds a deep raised h?
Reply With Quote
  #7  
Old 06-06-2010, 12:08 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,726
Default photos

Brian is still an active member here, so we'll start a thread with his name on it and he'll stop by! I will leave him a private message.

Missy
Attached Images
File Type: jpg DSC01760.JPG (40.7 KB, 0 views)
File Type: jpg DSC01762.JPG (45.7 KB, 0 views)

Last edited by missy : 06-06-2010 at 12:12 PM.
Reply With Quote
  #8  
Old 06-06-2010, 01:14 PM
EFMama EFMama is offline
Member
 
Join Date: Apr 2009
Location: Canada
Posts: 45
Default

My 3 yr old's didn't seem to be deep. We were new to hemangiomas with him and our dr wasn't concerned. It was on his back, we didn't pay much attention to it. It was only when our second son was born and then started developing one on his forehead that we started researching them.

Here are my posts with pics (the last one shows involution)

http://www.birthmark.org/board/showthread.php?t=3414
http://www.birthmark.org/board/showthread.php?t=3406
http://www.birthmark.org/board/showthread.php?t=3575
http://www.birthmark.org/board/showthread.php?t=3798
__________________
Me - Aimee - Spot on liver
Elliot, 9/20/06 - H on back (nearly gone)
Felix, 7/28/08 - H on forehead (in involution)
Taking the 'wait and see' approach, for now.
Reply With Quote
  #9  
Old 06-07-2010, 04:36 PM
stepmom of 2 stepmom of 2 is offline
Member
 
Join Date: Aug 2009
Posts: 36
Default

it looks like it is starting to involute to me... personally, i would keep waiting and see - may need surgery later if there is saggy skin left, but i'd hate to put a child through sugery unless it's more necessary... that is a personal choice however... isn't it fun making these decisions as a parent? sheesh...
Reply With Quote
  #10  
Old 06-07-2010, 10:58 PM
ScarlettsMommy ScarlettsMommy is offline
Member
 
Join Date: Mar 2010
Posts: 40
Default

My daughter is almost 12 months and she has the exact same birthmark. It has faded in color, but not really changed in size too much. It has a scab on it that can't seem to heal (not sure if it ulcerated or if she hit it on something).

We are leaving in alone. We live in Kansas and there are not Drs that treat hemangiomas around here. Her hair will cover it someday, so I just have to deal with the stares and questions until then.
http://i45.tinypic.com/fwqg3t.jpg
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump