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  #1  
Old 06-08-2015, 07:46 PM
lstory86@icloud.com lstory86@icloud.com is offline
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Default port wine stain response to treatement

Hello. My daughter has a reticulated port wine stain on her leg from the top of her thigh to her ankle on the outside of her left leg. The top part looks like it still has the circles from her first laser treatment, they are faded not anywhere close to the bright purple they once were, which was in February and the bottom part of her leg doesn't look like it responded to treatment at all. It looked like the stain came back over where she was treated. We have a third laser appointment this Wednesday and i just feel like this is a lost cause to have it treated. I know treatment can help make it less noticeable but is there a chance that she wont respond at all to treatment? The doctor said the success rate is around 70% but reading elsewhere i have found that it can be lower than that! I feel so helpless. Please give thoughts and such. Thank you.
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Old 06-09-2015, 04:55 AM
missy missy is offline
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Hi and welcome!

I can't really speak to percentage on treatment options... certain areas of the body respond better than others and every body responds differently. I also know that I've seen some patients that didn't respond as well on the first or second treatment, but then did respond very well on the third or fourth.

Every birthmark is so unique and every person is too.

I'm afraid you have to go with your gut instinct sometimes ... what is best for your child and your family ... and then make your decisions.

I wish we had good answers for you!

Let us know how she does this week.

Missy
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Old 06-12-2015, 08:09 PM
lstory86@icloud.com lstory86@icloud.com is offline
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thanks for responding. she did okay this week. i feel so terrible during the procedure cause she yells and screams cause she is scared. but i would be scared too if someone swaddled me and covered my eyes. the doctor said that we are to come back in four weeks and see how she responds to just coming into the office. he said that we may have to stop treatments until she is a little older because of her safety. She is comparable to a shark thrashing out of the water...poor kiddo i feel terrible but i dont want her to have this huge mark on her leg. but if we need to stop until shes a little older then we will stop...her safety comes first. hope everyone has a good weekend.
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Old 06-14-2015, 08:08 PM
missy missy is offline
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Thanks for the update.

I agree that you might have to wait until she's a little older... if I were her, I'd also be scared and the physician sounds like a good guy.

Keep us in the loop and let us know what's going on!

Missy
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Old 06-24-2015, 04:09 AM
cmannix cmannix is offline
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Hi lstory86,
It's so hard to watch your child get so upset, even when you know you are doing the best thing for her in the long run. I feel you are right in treating early. It's not just cosmetic; you might be helping to stop it from getting worse.
I don't know where you are or who your doctor is, but I do know that not all laser treatments are equal. Applying the right settings and length of pulse is really an art, and some specialists are more skilled than others.

For such an extensive stain as you describe, it might be worth being evaluated by a team of specialists. The VBF has an annual conference and clinic every year where teams of specialists will examine her for free (well, included in the registration fee). This year will be in Irvine, CA on Oct. 10, 2015. Next year will be in NYC. Let us know if you decide to go.
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