Nevus of Ota? - Page 12 - Vascular Birthmarks Foundation Forum
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  #111  
Old 02-19-2014, 04:06 PM
felish29 felish29 is offline
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Quote:
Originally Posted by areli View Post
Dee,

hello! i read your post and it sounds like you have exactly what my 16 year old daughter has. she has the nevus of ota in her left eye and left temple. and just recently it has spread all the way around her left eye, and yes it looks like a bruise. i would love to talk with you and discuss some things. have you had it since birth? has it grown or spread at all? my daughter sees a dermatologist and opthamologist yearly, but wondering if she should also see a neurologist? ah i just have so many questions im sorry! noone seems to have answers for me. cant wait to hear back from you!
I have had it since birth, but it has gotten larger and darker over the years. Several years ago I was seeing a dermatologist for my acne and she actually took a biopsy of it and told me it was a mole and there was no treatment for it. I am almost 30 years old and I stumbled across this plastic surgery site that went in depth about lasering port wine stains. So, yesterday I went for my visit and it was re-diagnosed as the naevus ota. I could see how the other dermatologist got it mixed up because they are similar and it is extremely rare in caucasions. Last night I did about 10 hours of research on this and have read about half of the posts from others. As of right now, I have only had a spot treatment done and will be seen next week. I am kind of worried though b/c these can actually be malignant (cancer) and I am a science major, so even though I know it's benign(not cancer) at this point, I am afraid of kind of messing with those melanocyte cells (pigment cells) and have them alter in any way. But, to be honest, I have always thought that if I could get it removed, I would be willing to lose my sight in that eye. I am at a point where I'd like to graduate pharmacy school without this defect. I am documenting my experiences with this removal and I am going to make a documentary to share with people that have this. It is literally life altering and debilitating to a lot of lives and if I can help another person feel more comfortable about this, then there was a reason this all happened, whether this treatment works or not.
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  #112  
Old 03-04-2014, 03:07 AM
npatel62 npatel62 is offline
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Hey all, I'm a 25 year old Indian American who has had Nevus of Ota for over 15 years now that I know of. I have gone to so many doctors and specialists only to be told it's only blood vessels that have popped under my skin, but I wasn't satisfied with that answer. I have tried a laser treatment once, but wasn't seeing any change after many times of going. I'm so thrilled to have found a name for this birthmark. I usually always wear make up to cover it up even if I'm running to the grocery store, it's slightly annoying, but I hate getting looks or asked what happened. Mine typically stays blue/black and is spread on my entire upper right cheek under my eye. I read about Q-switching laser treatment being successful, but I was wondering if you guys have any other ideas of possible treatments??
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  #113  
Old 03-21-2014, 05:01 PM
Humaj Humaj is offline
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Default I am getting laser treatment of Nevus of Ota

really glad to see you all here I am also getting laser treatment for my Nevus of Ota ,bt i think this Q-switched laser traetement won't work
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  #114  
Old 03-25-2014, 07:35 AM
thinguyen thinguyen is offline
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Default Nevus of ota

Hi everyone.
I was also born with a birthmark around my left eye covering half my face. I was always very insecure and lacked alot of confidence in myself. As a teen i really hated it and had never seen or met anyone with the same thing. I thought i was the only one as well. My birthmark was a dark purple, blue and slight green. I use to walk down the street and always get asked "who hit you" or what happened? This at times was annoying to explain. Sometimes id reply by telling them it was a birthmark and other times id snap and say its none of your god damn business. I use to cry about it all the time and my dad always says he wished he"d had it instead of me. Ive been seeing my dermatologist for 11 yrs now and have continuously had the qswitched laser treatment. The eye lid is especially sensitive, and around the eye is painful and does swell up. I have noticed so much improvement over the years. My birthmark use to be extremely dark and now i can barely notice it. If you looked really close up its still a little bit there, mainly on the eyelid and below the left eye. But am treating those areas slowly as it hurts alot. It is extremely costly as this is not just one treatment but numerous over the years but i think it is all worth it. Ive gained so much confidence back now and no longer get asked what happened to my eye! I really suggest and recommend the laser treatment to anyone. This has changes my life forever. I always protect my skin with sunscreen and try and wear a hat. Id like to meet people on here with the same thing to share advice and experiences. My email is thi_nguyen85@hotmail.com.
Hope to hear from you guys
Regards
Tee x
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  #115  
Old 03-25-2014, 08:01 AM
thinguyen thinguyen is offline
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Omg mrm mommy. I am a 28 female and i have to say you are truly beautiful. Mine of course was very similar to yours. Half left side of face and around the eye. I did have 11 years of laser and its worked so well ;-)
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  #116  
Old 03-28-2014, 01:27 PM
Sarahalsherif Sarahalsherif is offline
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Hi all
My name is sara from egypt,29y
I found your group while i search for treatment for nevus of ota i'm happy to share my experience and my cause with a lot of people
I think the q switched laser is rear little bit here in egypt
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  #117  
Old 04-01-2014, 08:57 PM
Senimelia Daveta Senimelia Daveta is offline
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OMG! I have the exact birthmark below my right eye. After years of being made fun of, glad to know I'm not the only one out there! Thanks.
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  #118  
Old 04-03-2014, 02:58 AM
Meulah Meulah is offline
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this is mine and i have low esteem. i used make up to cover up

31 f singapore.

do u think this will be remove?
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  #119  
Old 04-03-2014, 06:24 PM
thinguyen thinguyen is offline
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Hi. Yes. Yours is actually very light. You can remove it with laser. Mine was extremely dark and heaps bigger than yours and have removed most of it.
I hope you will be ok. Try not to let it get you down. There is hope and you are beautiful no matter what anyone says.
Xxx
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  #120  
Old 04-03-2014, 06:30 PM
thinguyen thinguyen is offline
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This is my picture now. You can see how much has been removed from laser now theres a little above my eyelid. I hate to wear makeup as i have acne prone skin. So i always go without makeup.
Thanks
X
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