I've been following this forum for a long time, but i'm not a member, so I can't reply. today I decide to join, because I want to find somebody who has nevus of ota , and also live in the same city or somewhere closer(within driving distance) to the city I live in. right now I live in Milpitas, california, united states. I think the chance is slim, but just giving it a try here. I always hope to find a friend with nevus of ota and we can meet, talk and support each other in real life, not just online. and maybe we can do the treatments together and follow each other for treatment and improvement. I feel I really need someone to support me in real life,because I always feel so lonely and depress.
anyway, my name is anita. I'm chinese or should be called taiwanese. I speak mandarin, english is my second language. i'm 24 years old. I have had nevus of ota my whole life until now. I have it on my right face, around the eyes(upper and lower eyelids), in the right eye's sclera and eyeball so it changes my eyeball color to black
my left eyeball is brown), also on my forehead, nose bridge, nostril, and around the left eyes as well(but my left eyeball is not affected, and left face is not affected )
I always feel my area is quite big, I hate to have it around the eyes and nostril because it is hard to cover it up, I also have sensitive skin, so I don't really like make-up.(i use covermark) I always hate to see myself in mirror because my half face is all bluish mix with black, especially the eyes, it looks so scary, ugly and horrible.
I have had five treatments a few years ago(not all in US) , but I don't see much improvement in the last two treatments, so I stop, money and pain issue are also among the reasons. even though I had numbing cream and numbing shot, I still felt very painful. some area is a little tolerable, but most area hurts a lot. also, after laser treatment, sometimes it take up to 14 days for healing..
my e-mail is firstname.lastname@example.org
, please contact me if you live in the area . if you don't live in the area, you can still connect with me though. I want to connect with people who has the birthmark and understand my poor english. if you have trouble understanding what I wrote(sorry!), than don't connect with me.
this is my first time leaving e-mail in public, but it is a birthmark forum, so hopefully there would not be any spam or virus sending to my e-mail address.