I am wondering what suggestions anyone has on how to make sure your child's medical needs are taken care of while you have to be gone. I usually write down directions but I am worried about this since my husband and I will have to be gone for at least a week (maybe longer) from our kids this summer because I have to have brain surgery in Omaha. Our kids will be staying with my mom but she doesn't live close to us so is unfamiliar with the care routines. Becca has all her skin care issues associated with her CMTC plus she is chemically sensitive so that is why I am trying to get my mom to come to our house where special cleaners are used. Ben has allergies and asthma and is on meds. twice a day and shots every other week. Anna is allergic to strawberries and sunflowers (and sunflower oil) which is in many products. I am really concerned about there care while I am gone. I am afraid if I write down all the directions the book that it would turn out to be will be thrown in the corner and forgotten. Any suggestions would be appreciated.
We talked about my mom taking me to Omaha instead. She won't drive in Omaha so we are left with my husband taking me since I won't be able to drive until after I have been cleared by rehab (about 8 weeks after surgery).
Ben (8) could probably help her through his meds and I am going to plan the meals so hopefully Anna (5) wouldn't be exposed to anything because I will buy all the ingredients ahead of time.
Sometimes my mom frustrates me because she doesn't see how important it is that there meds be given the way they are prescribed, that Anna doesn't eat anything she isn't supposed to (she also sneaks food which worries me), and I fear coming home to Becca's skin being a complete mess. I guess it will all work out but it is another stress.
Thanks Missy, I will look into it. I was planning to freeze most meals - I do that on a regular basis before school starts anyway. I will just add another round this year! I don't think our insurance would pay for it but I can check. The other thing that I thought of was getting some respite care for Becca to help my mom out some. We have never used it but it was offered to us as a service through our Birth-to-Three program. I will check out the website! I appreciate it!
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.
Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
of merchantability and fitness for a particular use or purpose are
hereby excluded. VBF shall not be liable under any theory or indemnity.
In no event shall VBF be liable for any damages, direct or indirect,
and all other damages, direct or indirect, special, incidental,
consequential or punitive, are hereby excluded even if VBF has been
advised of the possibility of such damages.