22 m, scalp hemangioma not going away - Vascular Birthmarks Foundation Forum
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Old 04-12-2011, 02:03 AM
ScarlettsMommy ScarlettsMommy is offline
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Default 22 m, scalp hemangioma not going away

So my husband and I have been talking about my daughter's hemangioma (right about her forehead) she is 22 months. It has not changed for awhile and it does not seem to be going down in size. Who should I email to ask about what our options might be. Surgery mainly.. And how much of a pain will insurance be? We live in Kansas and I know we will have to travel.

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Old 04-12-2011, 11:00 AM
missy missy is offline
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Well, I would contact Dr. Levitin at http://birthmark.org/experts.php and ask him what your options are.

She's a cutie patootie!

Missy
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Old 04-12-2011, 01:02 PM
KatieG KatieG is offline
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We saw Dr. Waner in NYC to have my daughters scalp hemangioma removed. Had a wonderful experience wit him and I got my insurance to pay for it.
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Old 04-12-2011, 02:21 PM
ScarlettsMommy ScarlettsMommy is offline
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I email Dr. Levitin yesterday and he said he would recommend surgery. I am going to talk to him over the phone to find out more.
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Old 04-12-2011, 08:19 PM
KatieG KatieG is offline
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Since its visually seen on her scalp, you might have better luck with your insurance. My daughters was on the top of her head so that helped my case.
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Old 04-12-2011, 09:56 PM
ScarlettsMommy ScarlettsMommy is offline
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Dr. Levitin called me this afternoon. He said that he works with my insurance and that he will get it all sorted out for me. I will be traveling alone to california with her, my husband just got a new job and we don't want to ask to take time off for him to go, plus it will be cheaper this way. So I emailed him my insurance card (photocopy). So we will see what happens next..
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Old 04-13-2011, 12:19 AM
missy missy is offline
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He will get it all sorted out! When do you think you'll be able to go?

Missy
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Old 04-13-2011, 01:38 AM
ScarlettsMommy ScarlettsMommy is offline
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I'm hoping he will get back with me soon so I can figure out when we can schedule it. Ideally I would like to get it done before her 2nd birthday (June 25th).
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Old 04-13-2011, 06:31 PM
shannonhinz shannonhinz is offline
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Here is Julia's hemangioma about 1 month post surgery with Dr. Levitin
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File Type: jpg IMG_4121.jpg (11.9 KB, 0 views)
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  #10  
Old 04-13-2011, 07:44 PM
ScarlettsMommy ScarlettsMommy is offline
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Oh wow Shannon, that looks amazing! Thanks so much for sharing.
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