So my husband and I have been talking about my daughter's hemangioma (right about her forehead) she is 22 months. It has not changed for awhile and it does not seem to be going down in size. Who should I email to ask about what our options might be. Surgery mainly.. And how much of a pain will insurance be? We live in Kansas and I know we will have to travel.
Dr. Levitin called me this afternoon. He said that he works with my insurance and that he will get it all sorted out for me. I will be traveling alone to california with her, my husband just got a new job and we don't want to ask to take time off for him to go, plus it will be cheaper this way. So I emailed him my insurance card (photocopy). So we will see what happens next..
An international charitable
organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment,
provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance
for individuals with birthmarks.
Here you will find information and resources for patients and families affected by hemangioma, port wine stain,
arteriovenous malformation, capillary malformation, lymphatic malformation, Sturge Weber syndrome, Klippel-Trenaunay syndrome, and any other type of vascular birthmark
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