ANY learning difficulties in children exposed to general anesthesia in infant-hood? - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 06-27-2011, 03:46 PM
Superchikk Superchikk is offline
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Our son is almost 4 years old and has had 11 laser treatments under general anesthesia. Honestly, I was unaware of the suspected connection between GA and learning disabilities, but I can't say I'm surprised. Still, I would've made the same choice to continue his treatment.

I am the oldest of 7 children and helped raise many other kids outside of my family, so I've been around kids a lot. My son is one of the most observant, highly processed thinking kids I've ever been around. He scares me some days with the things he comes up with...makes this Momma feel pretty inadequate! I really don't think GA has had an adverse affect on his ability to learn or process.

That being said, I know that not everything effects everybody. But we have seen a dramatic change in his PWS since beginning treatment, and since it was on his face with possible complications to his ear, mouth, and eyes if it were to grow, I have no doubt that we did the right thing. Everyone has to live with the choices they make for their kids - and it's not always easy.
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  #12  
Old 06-28-2011, 03:04 AM
dorota.pawlak@interia.pl dorota.pawlak@interia.pl is offline
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To Nickbar: Thank you - I have read this response from specialists as they responded to original article that has shown on the internet over a year ago. There is more evidence now available here: http://www.cpirf.org/stories/2286 ,or here http://www.anesthesia-analgesia.org/...06/6/1681.long, and in many other new articles I came across recently and I do each new time I start to search for answer. I understand that the PWS kids are healthy and duration of surgeries are short but studies show many of those kids who show increased risks for learning difficulties after more than 2 exposure do anesthetic agents during first 3 years of life were in general healthy too, as in example of hernia repair surgeries. Thank you for sharing though, that article did not reassured me to the point to change the mind yet.
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  #13  
Old 06-28-2011, 03:19 AM
dorota.pawlak@interia.pl dorota.pawlak@interia.pl is offline
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To Superchikk:
Your reply gave me a hope. Thank you for sharing. I really would love to hear from parents like you; they personal stories, as those informations would clear a lot of other parents concerns. I am still cautious and will wait till my boy is 3 years old, because his PWS is not as dramatic and not everyone notices it as much as when he was little. I'll post some photos of how he looks now. We are very pleased with what the laser therapy did for him as far and I just think, I should not push his luck in the new and unclear evidence of GA adverse effects. Thank you for reply!

Last edited by dorota.pawlak@interia.pl : 07-21-2011 at 02:14 PM.
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  #14  
Old 06-28-2011, 03:51 AM
dorota.pawlak@interia.pl dorota.pawlak@interia.pl is offline
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To Abatie
I haven't spoken to doctor. When I cancelled the appointments the receptionist told me that they do treat older kids with success too. That's all, I really should book myself to see his dermatologist and discuss it.
Oh yes, people can be rude about differences and I have seen some of it already, therefore the decision of waiting with his surgeries till latter date is so painful. I just looked what Cutis Marmorata Telangiectatica Congenita is.. I am sorry to discover such a condition and it seems there is not much treatments out there? I hope you're doing well and yes, thankfully it is on her legs not on her face. My boy has a facial difference that you can't hide, but his PWS is not as bad and he is a handsome boy - We'll do what we can to bring him up with much needed self confidence. PS I posted his photo in my earlier reply.
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  #15  
Old 06-28-2011, 07:16 PM
nickbar nickbar is offline
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FYI, my son Nicholas is 8 years old and was under ga 9x for 1 hour and 1/2 MRI and 8 laser procedures (2 of which were longer then 30 min. as they put tubes in his ears during one laser procedure and the other was a more intense laser tx. with the doc tracing vessels. He doesn't have any learning disabilities. I know that isn't much proof of anything...but that is our experience.


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  #16  
Old 08-23-2012, 05:57 AM
Babyshine12 Babyshine12 is offline
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Quote:
Originally Posted by nickbar View Post
Also, We had a pediatric anesthesiologist speak at our previous California Conference. We spoke on risks of anesthesia use in small children. I will search to see if I can find information on his presentation.
Can I get the information too
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  #17  
Old 11-23-2013, 09:55 PM
moondancer moondancer is offline
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Quote:
Originally Posted by dorota.pawlak@interia.pl View Post
My child is otherwise healthy, he has a cosmetic issue- that is port wine stain on his both ears and parts of his cheeks and neck. He responded well to his surgeries, as far his birthmark is gone by about 50%. We treated him twice under GA and 3 times without.
Do you mind to share your son's experience to have the treatment without GA? Was it traumatic for him?
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