Just found out the all bones in face under PWS demonstrating overgrowth (nose, cheek bone, maxilla) and face assymetric. Anyone else experiencing this? I am in mid-30s. Any treatments suggested that helped to slow down this process?
Hi all, New to the organization, so not sure I am doing this correctly. But, I have noticed lots of changes with my teeth I think- how does one know the bones showing overgrowth? What were your symptoms. I am finding now at 43 things are popping up that I didn't realized were related to my large facial PWS.
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.
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