3 yr daughter lower lip hemangioma surgery , advice please - Page 2 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #11  
Old 06-21-2011, 04:14 PM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default

It sounds like you are getting helpful information. Please feel free to email me your contact information and anything you want me to forward.
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #12  
Old 07-05-2011, 02:46 AM
Kdiperi Kdiperi is offline
Junior Member
 
Join Date: May 2011
Posts: 9
Default

Just an update we , currently have a second surgery scheduled for July 14 at the new surgical facility in bucks county PA . Dr low will be working again and using stronger sutures this time adult strength . As to hold the insccsion closed tighter And stronger . He feels that there a good possibility that she shouldn't need any other surgery after this on . I'm hoping.
Reply With Quote
  #13  
Old 07-05-2011, 01:30 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,711
Default

Let us know how it goes!

Missy
Reply With Quote
  #14  
Old 07-06-2011, 04:04 AM
smurph smurph is offline
Senior Member
 
Join Date: Jan 2007
Posts: 408
Default

Good luck! I'll be thinking of you. I hope everything goes well and you can put this all behind you.

Shannon
Reply With Quote
  #15  
Old 06-06-2012, 02:17 PM
ricpra ricpra is offline
Junior Member
 
Join Date: Jun 2012
Posts: 1
Default My daugters stiches opened as well..

Hello

i have been reading about your daughter ..hope she is doing good . i wanted to contact you 'coz we got our daughter's hemangioa surgery by Dr Low at Chop philidaphia as well...for two month her stitches were fine but in early feb 2012 her stitches opened up and since then her wound has not healed ...we are very sad and don;t know what to do ...i know thar your daughter went for second surgery with dr low ..please tell me how is everything now ...we are not sure why my daughter's stitches opened please help me

Thanks
Reply With Quote
  #16  
Old 06-22-2012, 03:23 AM
indra indra is offline
Junior Member
 
Join Date: Jun 2012
Posts: 1
Default 17 year daughter has lip hemangiomas

My daughter has lip hemangiomas (very bulky) and scheduled for a plastic surgery with Dr. David Low in two weeks. I would like to talk to kdiperi and any other patient who may had similar surgery done by Dr. Low.

would appreciate if you can contact me at "indra.khatri5@gmail.com"

thanks
Reply With Quote
  #17  
Old 07-11-2012, 04:06 PM
Kdiperi Kdiperi is offline
Junior Member
 
Join Date: May 2011
Posts: 9
Default Reply in regards

I do apologize for not contacting you sooner . Yes our daughter is doing much better now . We had another surgery a few weeks later to fix the issue where her lip had reopened . I had contacted a few different doctors in regards to the issue . All the doctors kept saying that Low is a true pioneer in the field and he has a very concertive way of doing things . So with that we had him redo the surgery ASAP . Her lipped amazing compared to what it looked like before and after the surgery . She has a full lip now very little puffiness but still has some red blotchy areas. We are going back to him in October or November for laser treatment to help flatten out the area and get rid of the red discoloration.

That time we went thought though after her surgery had to be one of the hardest times we had ever gone through . I had to literally pull my daughters lip together and put support tape on it to hold her lip together just so she could eat . Poor girl couldn't drink with out fluid leaking out of her mouth , she constantly drooled , etc .........

Thank god she's much better now , I will post pictures this evening .
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump