My daughter is now 9months and two weeks. I wanted to share with you my daughter experience and give you an update about her current condition.
After my last post the number of hemangioms increased up to almost 100 on her skin and 7 on the liver and as well they were increasing in size. They stopped increasing in number and size when she was 3 months. At that time I was in contact with many doctors in London, Paris and with Doctor Levitin. All the doctors adviced me to start with Propranolol given that got some hemangioms in her eye, perineal area( they were everywhere !) what happened next is amazing ! One of the biggest hemangioms (near her left ear) started changing color and a week later started to shrink, a month later, all the hemangiomas on her face, hands, feet almost disappeared completely (in total around 20), a month later the rest of hemangioms started shrinking and when she was 7month she had only one hemangiona left on her leg and now it become very small and almost gone. When she had 4 months she did a scan of the liver and the doctors noticed that the hemangiomas in her liver started to shrink. She did an ultrasound scan last week and it seem that they disappeared completely.
This is the story of my daughter with hemangiomas. I hope they will never come back! I hope that you children be all cured and become completely healthy.