AVMsurvivors.org - Vascular Birthmarks Foundation Forum

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06-24-2012, 10:59 AM

dancermom

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Join Date: Jun 2012

Posts: 36

AVMsurvivors.org

Hello, everyone, I would like to invite you to join AVMSurvivors.org (http://www.avmsurvivors.org/) if you haven't already. There are nearly 500 members there who have or had AVMs or VMs outside the brain, and you can find some useful information and support there. My son had an AVM on his forehead near his right eyebrow. AVMSurvivors helped us get to the right surgeon, and my son has been AVM-free for 3 months now.

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Mission Statement: An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance for individuals with birthmarks.

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