New here as well - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Thread Tools Display Modes
Old 09-03-2011, 05:44 PM
delaneysmama delaneysmama is offline
Junior Member
Join Date: Sep 2011
Posts: 1
Default New here as well

I am the mother of a beautiful little girl named Delaney. She was born with 2 hemangiomas on her right and left leg. Since birth the number of hemangiomas has increased to 9. We saw a ped. derm and were prescribed topical propranolol. Has anyone had any luck with this drug? As of now, most of hers are flatter in nature. She has follow up medical testing due to the number of them in the upcoming weeks.
Reply With Quote
Old 09-04-2011, 12:05 AM
missy missy is offline
Join Date: Apr 2006
Posts: 1,714

Hi and welcome!

Other parents will come along soon. There are a few here who have used timolol.

Reply With Quote
Old 09-04-2011, 02:09 AM
Crobbins Crobbins is offline
Junior Member
Join Date: Jun 2011
Posts: 13

Hiya! I have a delaney too!! Her H is right under her right eye. We tried timolol briefly but the location of her H required more aggressive treatment since it was beginning to affect her eyesight. She is 5 months old. Started propranolol at 3 months and have seen a tremendous difference in the 2 months she has been on it!
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump