I emailed one of the doctors on this website. I always thought i had a port wine stain and all the doctors i have seen have told me that. As i get older (i am currently 20) it has gotten thicker and rough. Lots of blood blisters and some parts are scaley. Well when i sent a picture to a doctor and described it he said that he thinks i may have Angiokeratoma. I have no idea what this is and there is not much information on it that i can find.
just wondering if anyone knows much about this, or has it themselves? I am pretty worried about it, and just want it gone.
When i looked up pictures all the cases looks ALOT worse them mine...but i am worried mine will soon become like that.
the picture below is the only birthmark picture i have of mine and its old and not very good...but whatever helps.
Can I ask if this was present at birth? or did it show up after birth?
My daughter has VERY similar markings on her left leg in the same pattern as yours. I have been told it is not a port wine stain, but her doctor isn't sure about WHAT it is. She is currently having laser surgery on it but we haven't seen much change after 2 treatments.
Yes, my birthmark has been with me since i was born.
I had laser surgery for two years once a month, NO change AT ALL. just money down the drain and tons of pain.
The doctor asked me if i wanted to travel, I live in montana, i can get laser surgery here...but nobody really specializes in birthmarks....so i would have to travel to spokane, Washington....inconvienent
An international charitable
organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment,
provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance
for individuals with birthmarks.
Here you will find information and resources for patients and families affected by hemangioma, port wine stain,
arteriovenous malformation, capillary malformation, lymphatic malformation, Sturge Weber syndrome, Klippel-Trenaunay syndrome, and any other type of vascular birthmark
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