Compression stocking for calf haemangioma - Vascular Birthmarks Foundation Forum
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  #1  
Old 02-03-2012, 12:38 PM
Jtest123 Jtest123 is offline
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Default Compression stocking for calf haemangioma

Hi All,

Has anyone tried using compression stockings for calf haemangioma? Just thought I would share our experience which might help some of you.

My son was diagnosed at age 8 (he's now 14) with intramuscular haemangioma in his right calf which involved all 3 muscle groups: peroneal, gastrocnemius and soleus. His right calf was noticeably larger and perpetually "turgid".

By the time he was 12, the pain became very frequent, almost daily (he could not straighten his leg when in pain and had to hop on one foot and was taking ibuprofen regularly to control the pain). Surgery was not an option as his haemangioma was extensive. We decided to try sclerotherapy and most unfortunately, it did not help his hemangioma but the alcohol injured his peroneal nerve instead. He suffered a complete foot-drop as a result and was put on an Ankle-Foot-Orthosis so that he could walk without tripping over his own foot. Thankfully, his peroneal nerve recovered eventually (after several months of anguish of having to live with both haemangioma and foot-drop).

After the whole episode (which now puts both surgery and sclerotherapy as too high risk for us), we were told by the doctor to try compression stocking (specs: 20-30mmHg, below knee, open toe). This simple solution has worked very well so far! It has been a year and my son hardly suffers from pain as long as he puts on his compression stocking and is able to walk and run without problems. He doesn't wear the stockings to sleep and at home, he is often able to go without stockings too.

Hope this helps.
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  #2  
Old 02-04-2012, 12:12 AM
missy missy is offline
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Hi and welcome!

Thank you for posting all that. It will help other parents and patients to read about others' experiences.

I wish I had a compression stocking that worked so well! I need a whole body one! LOL

Missy
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  #3  
Old 02-22-2012, 02:53 PM
pinky lim pinky lim is offline
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Default compression stocking for children

Dear all ,
I would like to enquire where I can get compression stocking for asian children ( my daughter has been diagnosed hemangioma ).

Thank you .

Best regard ,
pinky lim
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  #4  
Old 03-04-2012, 11:38 PM
Jtest123 Jtest123 is offline
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Hi Pinky,

May I know which country are you from? We are actually from Singapore. We were refered by our hospital here to contact their local suppliers directly for my son's size. Alternately, you can check with your local pharamcy (which usually carry only adult sized stockings) and ask them to indent for you.

You may also consider ordering online (eg Amazon.com) as there are many selections available. Sizing charts are available for each brand (you will have to individually search the manufacturer's website for the sizing charts).

Also you may want to first discuss with your daughter's doctor on the suitability of compression stockings (and the required grade of compression).

Julia
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  #5  
Old 06-28-2012, 05:23 PM
danielagomez danielagomez is offline
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Quote:
Originally Posted by pinky lim View Post
Dear all ,
I would like to enquire where I can get compression stocking for asian children ( my daughter has been diagnosed hemangioma ).

Thank you .

Best regard ,
pinky lim
Pinky
You should shop online to get your compression stockings.
Many sites ship all over the world at an affordable rate now.
I am in the states but I buy from www.LegsTherapy.com
Great service, Great Price, Fast Shipping

Daniela
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  #6  
Old 09-25-2012, 11:49 AM
uk uk is offline
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Hi Pinky,

I am in Canada and you can get this from medicalmart their website is www.medimart.com.

Thanks,

UK
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  #7  
Old 08-24-2014, 05:02 AM
almuthana almuthana is offline
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hello julia,

i can’t say how i am greatful to your post, my daughter 8 years old has exactly what your son has, she has a lemphatic malformation in her leg and thigh, she is having a scelotherapy (alcohol) in her leg since she was 2 years old, three days ago she suffered from a drop foot after her scelotherapy procedure, when i reed your post about your sons recovery from the drop foot i was over the moon, i was so desperate, my daughter now is on steroids pills it should be for a week, with braces as well so she can walk properly, i would appreciate if you can tell me about your son recovery process from the drop foot, it will help a lot, god bless you

almuthana
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