Hi there! I think it is definitely a good idea to go see a vascular birthmark specialist to at least hear what your options are and have it monitored. There are new treatments now that can help and it may be best to catch it sooner rather than later. Your post brought back memories for me, because of a similar experience we had with our pediatrician. Our ped. and our specialist were saying two different things and we were totally stuck in the middle and did not know who to believe. It was awful! The ped. kept saying to just leave it and that it will go away eventually. He said that the specialist was only concerned with her lip and not her whole body. When I complained that she had sore on her lip he insisted it didn't hurt and just told us to put vaseline on it. A few days later we were dealing with a raging ulceration and a child who wouldn't eat. I still felt like a terrible Mom though for giving her the steroids because I was so afraid of doing her permanent harm. We ended up going with the Specialist's advice from then on and eventually got a new Pedi. In my opinion, I think it's a good idea to get a second opinion and then you can go with what you are most comfortable with. 3 of my 4 daughters have hemangioma. One had medicine, surgery and laser (lip). The other two had no treatment at all and they are going away on their own (hand, arm). So it is possible. Looking on the internet is scary because it usually shows the worst possible scenarios. But I have also learned a lot by researching on the internet, so becoming more educated about hemangiomas is a good thing because it can help you to ask questions of the docs and know more what to expect. Sorry I'm rambling! It's 1 am here and I'm zonked!! I'm in the middle of cooking meatballs for my daughter's b-day party and they are not going to be done until 2am! So I'm killing time online!
Let me know if you would like to see any pics of my daughters. I'd be happy to share. It would be great to see pictures of your daughter too.