laser treatment: when to request it? - Vascular Birthmarks Foundation Forum
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  #1  
Old 05-31-2012, 12:28 AM
millbrae_mommy millbrae_mommy is offline
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Default laser treatment: when to request it?

hi, i'm wondering when is the best time to request laser treatment for "spidery" looking H (on cheek, superficial)? or do you think it is best to let time do its job and see if they fade?

thanks!
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Old 05-31-2012, 04:19 AM
smurph smurph is offline
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I think it depends on a few things. How old is the child? How long has it looked that way? Has there been any change over the past few years? My daughter had laser on the skin between her nose and upper lip last year. She was 6. It looked just like you were describing...spidery looking veins leftover from her hemangioma. It had looked like that for the past few years with no change. And her doctor said he didn't expect it to go away any more on its own. We also got a second opinion from the team at the Vascular Birthmark Conference and they said the same thing...so we did it.
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Old 05-31-2012, 04:53 PM
blanca blanca is offline
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thank you smaurph. my daughter, who is 7 months old, has this type of spidery marks on her cheek/upper left forehead and i really doubt that they are going to go away on their own. propanolol is not working on them either.

since your daughter has had laser already, what type of questions do you suggest i ask the dr. regarding laser option to get rid of them?

i feel like i we should have the laser treatment soon, instead of waiting. but i also don't want to cause harm to her if not needed. but then i don't want her to go to preschool (i know, i am ahead of myself here, lol! but you know how quick time flies!) and i don't want otehr kids to make rude comments and for her to feel bad about herself at such a young age.
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Old 06-01-2012, 02:04 AM
smurph smurph is offline
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Do you have a picture you could post? That would be really helpful to see. Did you actually say if it was a hemangioma or not? That would be a big factor I think in whether or not laser would be done. Some questions I would ask are: do you expect it to fade more on its own over the next few years? If they did recommend laser, I would ask if they suggest anesthesia or not? how many treatments would they expect?

Both my daughters' hemangiomas faded significantly between the ages of 6 months and 3 or 4 years old. After that, they didn't change so much. Also, my daughter had her lip hemangioma all through preschool and it was never a problem. (after I had worried about it for about 3 years!!) I talked to the teachers about it, and it was handled beautifully. I would say my daughter didn't even seem to notice or care until she got into Kindergarten.

Here's both of my daughters' hemangioma photo albums. Faith had steroids until she was 10 months old and Rachael had no treatment on her hand, just so you can see how it faded over the years.

http://www.facebook.com/media/set/?s...l=a 18fd285c7

http://www.facebook.com/media/set/?s...l=1 b4cbdd436

It can't hurt to get the opinion of a specialist and see what they have to say! The laser was not too bad I have to say so if they recommend it I wouldn't be too worried. If they think that it will fade more, try to be patient and see how it goes...you still have a lot of time. I know it's easier said than done though. Hang in there!
Shannon
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  #5  
Old 06-04-2012, 05:22 AM
blanca blanca is offline
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hi smurph...thank for the reply. i posted pics, the post is named : pics to share .

i had trouble loggin on with my previous user name (which was millbrae_mommy) so i had to do another one =D.

thanks for sharing the albums too. i have an MRA/MRI scheduled for her this month. depending on what they see, i want to request for them to lower the med dose as well (i feel it in my gut that propanolol is affecting her mood...either that, or i have a grouchy baby?)
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