hemangiomas propranolol - Infant - HELP - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 06-27-2012, 01:44 AM
missashleynicole missashleynicole is offline
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We have now been on the propranolol for a week and a half and it has gone down a lot. It is barely raised now, and a light red as opposed to a deep red color. I tried to post pics but couldn't figure out how.
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  #12  
Old 06-27-2012, 03:04 AM
Brownio3 Brownio3 is offline
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We are on day 3 of propanaol. The underlying tumor almost went away over night.

This is a slide show we posted to youtube to track the progression.

http://www.youtube.com/watch?v=8WIED...&feature=g-upl
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  #13  
Old 06-27-2012, 02:22 PM
evanskl4 evanskl4 is offline
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That's great progress! He is a cutie.
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  #14  
Old 07-01-2012, 02:50 AM
jennr11 jennr11 is offline
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Hi, my daughter was a quick delivery with a "flat bruise" on her forearm, wrist, and thumb area (almost like she has a wrist guard on) that began to darken in color and raise by the age of 2 weeks old. After finally getting a consult with a ped dermatologist we started our daughter on Propranolol when she was 9 weeks old. Her hemangioma was growing rapidly and beginning to ulcerate by 8 weeks old. I am a nurse and was scared to death to start her on it after I read all the side effects. She'll be 4 months old tomorrow and all I can say is wow what a difference 2 months on the drug makes! Her ulcerations did continue to worsen even as her hemangioma was shrinking, but after repeat visits with the ped dermatologist we finally figured out a plan and got them under control. I'm happy to say that as of today the ulcerations are totally healed! As far as the propranolol goes, we have had zero side effects. She's happy and growing and her hemangioma is getting better and better. I did notice this week that it seems to have regained a little more color and puffiness, but I feel confident it's just time to increase her dose since she's gained close to 3 lbs since she was first put on it. Good luck with your decisions, but I can't say enough positive things about our experience with propranolol so far!

Just now saw your update and slideshow above... glad things are going well. He is adorable!

Last edited by jennr11 : 07-01-2012 at 02:56 AM.
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