Hi, I'm 18 years old, I have PWS on my left arm, palm of hand, shoulder, half of chest and half of back. I started laser treatment aged 6 weeks and finished aged 10 years. It didn't make a dramatic difference to the colour and it has got darker recently, but I haven't had anymore treatment as its quite painful and will never fully get rid of it. I posted on here today titled 'embrace your birthmark' it's a brief story about my birthmark and how I deal with it. Don't be scared about him going to school, I have had a few hurtful things said to me but on the whole people just want to know more about it. Just remember your son is special - there is no one else in the world like him, every birthmark is different. It was known as 'Katie's pretty pattern' for the first few years of my life - I think that has probably helped me deal with it. Birthmarks are beautiful, they make us who we are.
I hope this helps! If you have anymore questions please feel free to contact me