My 3 yr old was just diagnosed with cm-avm after his lower lip was debulked because of a vascular malformation! He has multiple vascular markings with new ones popping up working at chop in pa! So confused and sad! Any help?
That is the thing the dermatologist at chop send us a letter saying follow up in a year! No avm's in brain and meeting with neurologist and plastic surgeon on sept 12th! No one seems to want to give us a treatment plan.... The new mark is on his arm. I was wondering what treatment plan is out there? Thanks so much
Also his lip seems to be growing backDr. Low his plastic surgeon said he will probably need multiple surgeries! Also he has a bicuspid valve and aortic stenosis. When doing his yearly echo they found an extra vessel near his heart! He has obvious external signs and now internal signs of this condition. I was wondering if anyone knows of any type of treatment to stop marking from popping up?
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.
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