Hi there! Where are you located? There are definitely options you can look into. If you are uncomfortable, you should try to get a second opinion before making your decision. Propanolol has been showing to be very effective on hemangioma and may have less side effects than the steroids I think. My daughter was on steroids 9 years ago and did very well on them and it was very effective. She had a painful, ulcerated lip hemangioma. She also had surgery eventually and laser. So anyway, there are options including surgery so I would just try to get as much info as possible and then go with whatever you feel is best. It is a tough decision but you love your daughter and that is what is most important- she will be ok. Hugs!
VBF Hemangioma Forum Moderator