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  #11  
Old 07-10-2014, 09:53 PM
Kroush Kroush is offline
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Originally Posted by smurph View Post
My daughter's hand hemangioma was not as large as your daughter's. The best way to explain I think would be to show you these pictures. Hopefully you will be able to see them. Let me know if you can't.

https://www.facebook.com/shannon.hoh...02383&t ype=3

I think the location of the hemangioma definitely is a big factor. My other daughter's lip hemangioma was technically smaller but it was more complex due to the location. I thought for sure they would recommend treatment for my Rachael's hand from the look of it, but the specialist said he expected it to do fine on its own. Goes to show I'm not an expert! hahaha! So it did totally go away on its own in the end...by pretty much 2 years of age. But the lip-not the same at all.

So that's why I think it is difficult to say, and usually the specialist will have the best info because they deal with them so regularly.

Good luck! Stay in touch!
Shannon
Hers healed amazingly well, though it looked super uncomfortable as it puffed up

I just today noticed my youngest's spreads all around her anus, so now I'm very concerned in case it should start raising. Especially if there's risk of ulceration that would get infected easily.

My eldest's is still raised on her head, but it's completely flesh tone and she has so much hair you wouldn't notice it.
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  #12  
Old 07-11-2014, 01:24 AM
smurph smurph is offline
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Honestly, if it were me, I would not delay in seeing a specialist. I have seen people posting on here about ulcerations in the diaper area and they can be very painful and hard to get a handle on. If you can be on the proactive/preventive end of that I think it would be very helpful in my opinion. It could potentially grow/change quite a bit by the 2 month check up. So maybe you could start by going back to the pediatrician and expressing your concerns and seeing if they have a specialist they would recommend, usually it would be a pediatric dermatologist or a pediatric plastic surgeon (with experience in treating hemangiomas.) I will also try to find out if there would be a doc in you area.
Shannon
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  #13  
Old 07-11-2014, 04:14 AM
Kroush Kroush is offline
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Is there anything I should do as a precaution to keep it from getting irritated and breaking open in that area? should I use diaper creams regularly or Vaseline or something similar?
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  #14  
Old 07-11-2014, 11:05 AM
smurph smurph is offline
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Hi there! I talked with the VBF Family Service Director and she recommended you see:
Sophia J. Hendrick, MD
900 E. Woodland Avenue
Knoxville, TN 37917
(865) 524-7107
Treated children in Knoxville since 1987 with treatment options for vascular laser including the Candela laser since 1989. The only board certified pediatric dermatologist in eastern Tennessee.

She also suggested that email Dr. Levitin which you already have. When he gets back to you, I would ask him your questions regarding the diaper area and prevention or ulcerations. We were told to use Aquaphor but I'm not sure the same thing applies here.

Shannon
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Last edited by smurph : 07-11-2014 at 03:34 PM.
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  #15  
Old 07-11-2014, 09:01 PM
Kroush Kroush is offline
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Quote:
Originally Posted by smurph View Post
Hi there! I talked with the VBF Family Service Director and she recommended you see:
Sophia J. Hendrick, MD
900 E. Woodland Avenue
Knoxville, TN 37917
(865) 524-7107
Treated children in Knoxville since 1987 with treatment options for vascular laser including the Candela laser since 1989. The only board certified pediatric dermatologist in eastern Tennessee.

She also suggested that email Dr. Levitin which you already have. When he gets back to you, I would ask him your questions regarding the diaper area and prevention or ulcerations. We were told to use Aquaphor but I'm not sure the same thing applies here.

Shannon
Thank you, I appreciate the help so much! It's scary dealing with such a very large area.I'm glad I found this community to help with the support they'll need!

I called her pedi again today and he said if it seemed to get more prominent or I just felt like I wanted a referral he would go ahead and give us one, so I said yes, I'd like to keep an eye on it so they're going to call back monday with a referral
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  #16  
Old 07-11-2014, 09:21 PM
smurph smurph is offline
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Great news!
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  #17  
Old 07-16-2014, 10:30 PM
Kroush Kroush is offline
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Her hemangioma has started to raise up. We have an appointment for Thursday the 24. I'm a little worried about side effects of Propanolol, because I'm hypoglycemic, so are all the women on my mother's side.
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  #18  
Old 07-17-2014, 01:27 AM
smurph smurph is offline
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I'm glad you were able to get an appt. Just tell your concerns to the doctor about the propanolol. Good luck! Keep us posted! I will be thinking of you on the 24th.
Shannon
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  #19  
Old 07-24-2014, 08:52 PM
Kroush Kroush is offline
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We went to the dermatologist and they told us to take the "Wait and see" approach and because it wasn't on the face or organ or something, it'd be fine and probably wouldn't go completely away so they'd recommend laser surgery around 5 years or so. They're referring us to a pediatric dermatologist.

There's a small white spot that's appeared on her hemangioma that looks like a little like callus skin, but indented. I asked her what it was, but she kept saying it was just a spot of skin.
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  #20  
Old 07-26-2014, 01:17 PM
smurph smurph is offline
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Hi there! If you feel comfortable with the docs recommendations then you can always watch it and see how it goes. I would suggest taking pictures of it regularly to document any changes...especially the white area you are concerned about. If you still feel uneasy, you could certainly go for a second opinion or try to push for a quicker appointment with the pediatric dermatologist-if you mention the size and location of the hemangioma plus your concerns about a possible ulceration beginning they would probably be able to get you in more quickly.
Shannon
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