Things that cause AVMs to enlarge - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

Reply
 
Thread Tools Display Modes
  #1  
Old 07-27-2002, 02:05 AM
FLASH
 
Posts: n/a
Default Things that cause AVMs to enlarge

Does the use of birth control pills affect the size of AVMs? What effect does weight gain or loss have on enlargement? Smoking?

Reply With Quote
  #2  
Old 02-21-2003, 09:55 PM
Cuety
 
Posts: n/a
Default Re:Things that cause AVMs to enlarge

I hve AVM and was told not to take birth control for the fear of having blood clots. Even though I have never had blood clots, the doctors aare still worried. The estrgen in the birth control can cause bloodclots in people that are at higher risk.
Reply With Quote
  #3  
Old 03-03-2003, 04:56 PM
KaraokeKamikaze
 
Posts: n/a
Default Re:Things that cause AVMs to enlarge

My friend suspects that she has an AVM after potentially being misdiagnosed over her entire life, she's going to get an MRI done this Friday. She's a 1 and a half pack a day smoker and I'm curious as to whether the smoking has affects on AVMs. I know smoking is bad enough for her health in general, I'd like to be aware of what to look for in terms of the AVM condition.

???

Thanks!
Reply With Quote
  #4  
Old 07-11-2003, 08:03 PM
c729
 
Posts: n/a
Default Re:Things that cause AVMs to enlarge

I think I've been on the wrong board in my previous postings, but I have a veinous malformation on my tongue. I'm 32 and have had it since birth, but it has increased in size over the last 10 years resulting in my teeth shifting, so I'm scheduled to start treatments next week. (A series of 3 CO2 laser treatments 6 weeks apart to hopefully reduce the size.)
I have taken birth control for about 10 years now and have never noticed any impact on my tongue. Things that do impact me are: alcohol (gives new meaning to a hangover), colds/various illnesses, and sometimes physical activity. The effects I have are either swelling or some soreness.
My regular physician told me that when I decide to have children they will need to watch me because he believes that might impact it or even cause others to grow.

Reply With Quote
  #5  
Old 07-27-2003, 10:25 AM
Gayle
 
Posts: n/a
Default Re:Things that cause AVMs to enlarge

I am 49 years old and was also born with a VM on my tongue. Which has grown over the years to a critical situation. Any hormonal change seems to cause mine to grow. Especially at puberty, through my two pregnancy's, menapause and the subsequent hormone therapy that was prescribed, and stress. I have trouble dealing with colds also. The malformation has now closed one of my sinus cavities, and is growing down my throat. There has been a noticable change on my cheek area where there is also a malformaion showing, my chin is now starting to show signs of also developing these ugly marks. I am hopeful that new technologies that are now available will help. I am scheduled for lazer treatment Oct 28th in Little Rock with Dr. Milton Waner. He seems to me to be the best in the field for this type of anomaly. I was so glad to find this website and find others who can relate to the issues that concern my situation. Will you let me know how your treatments went? I am so hopeful that situations like ours can be eliminated in the near future. Good Luck with your procedure. I will keep you in my thoughts and prayers.
Reply With Quote
  #6  
Old 09-26-2003, 07:08 PM
myasmom
 
Posts: n/a
Default Re:Things that cause AVMs to enlarge

I have a 23 year old daughter who has an AVM on her cheek. She was adviced not to take any birth control pills. I am new to the site, and I am so afraid of this condition and what it will do to her!
Reply With Quote
  #7  
Old 04-05-2004, 02:30 AM
christielee21
 
Posts: n/a
Default Re:Things that cause AVMs to enlarge


i have a venous malformation, and have always been very concerned about what pregnancy will do to it. i've read that pregnancy, BC pills, and other hormonal changes correlate with changes in VMs.
Reply With Quote
  #8  
Old 12-21-2005, 09:23 PM
gaminexx
 
Posts: n/a
Default Re: Things that cause AVMs to enlarge

Hmmm... so what about strenous exercise? Like extensive running? Swimming? Endurance sports? Do you guys think this has a large effect? When I was younger I was told not to. But now, being at 23, and with my AVM stabilized (but not gone), I've been more active. I just hope this doesn't aggravate and spawn new bleeding episodes. My AVM is on my lower jaw and lower lip.
Reply With Quote
  #9  
Old 12-21-2005, 09:36 PM
Sarah H
 
Posts: n/a
Default Re: Things that cause AVMs to enlarge

Hi, I just found this website last weekend. It is sooooooo good to finally know things that my daughter needs to avoid and/or do to help prevent her AVM's from growing. They are in the bones of her hand and forearm. I am reading your all's responses outloud to her so she will be aware of things that can aggravate growth. Some things we had already heard, such as puberty and pregnancy, the other things I hadn't thought of but am beginning to realize that there are small little things that we can do to help minimize the growth of her AVM's. Any other advise you can send our way would be greatly appreciated. Talk with you later, Sarah
Reply With Quote
  #10  
Old 07-20-2006, 12:43 AM
tallred32
 
Posts: n/a
Default

weight gain affects them avm's also
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Any one with AVM's of the arm and hand? Cinderella22 AVM Help and Resources 10 06-24-2012 11:33 AM
I need guidance for multiple head and neck AVMs lskellyrn AVM Help and Resources 5 08-15-2009 11:50 AM
Is there a way to stop AVM's from developing in the 1st place Sarah H AVM Help and Resources 7 07-20-2006 12:41 AM
Pelvic AVMs? Sarah H AVM Help and Resources 16 01-31-2006 12:55 AM
AVM's of the extremities noraluiza AVM Help and Resources 12 04-05-2004 02:00 AM