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Expert's Corner
VBF NEEDS LANGUAGE TRANSLATORS
- SPANISH, PORTUGESE, AND ASIAN LANGUAGES Babies with Birthmarks™
Recent Medical Papers and ResearchVBF has a great deal of research available, including
a bibliography for offline research. |
The Vascular Birthmarks Foundation
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Lisa and Greg Fortunoff,
Mark of Beauty Gala Chairs and Sponsors |
Edward Strausman 2008
Conference Honoree |
We are very excited to announce that the 2008 Vascular Birthmarks Conference will be held in New York City on Saturday, November 15th. This year the conference is one full day only, with a fundraiser the evening before the conference. For the first time in VBF history, we are having the “Mark of Beauty” Gala to jointly benefit VBF and the VBI (Vascular Birthmarks Institute) at Beth Israel. Dr. Milton Waner and Dr. Alex Berenstein are the 2008 Co-Directors of the conference and Lisa and Gregory Fortunoff are the Friday evening Gala Chairs and Event Sponsors. The “Mark of Beauty” Gala will take place at the incredibly beautiful Hudson Theatre located at 145 West 44th Street from 7pm until 10 pm on Friday, November 14th. The conference will take place at the Beth Israel Union Square Auditorium, Phillips Ambulatory Care Center, at10 Union Square East between 14th and 15th Street on November 15th. It will start at 8:30am, with day care drop off and conference registration/check-in starting at 7:30am.
This year’s conference is being held in Memory of Edward Strausman, and it will be unlike any other conference because it will include lectures by the top specialists in the country concerning the latest treatment of vascular birthmarks and tumors. In addition, the conference fee is only $50 per family and the clinic fee is only $50 per family. The clinic portion of the conference is critical, as it gives every family that signs up for a clinic appointment the opportunity to get an accurate diagnosis and an informal treatment plan. For those requesting that all fees other than a $25 non-refundable fee be waived, please contact Basia Joyce at (518) 374-2062 to register by phone.
We will have a limited number of free hotel rooms at the Milford Plaza located at 700 8th Avenue between 44th and 45th Street for FRIDAY EVENING ONLY. These rooms are available on a first come basis. After these rooms are gone, families will be required to make their own hotel accommodations. We will be providing a list of affordable places within a reasonable location of the conference for those who do not get a free room. However, this is a very expensive time of year and so any affordable rooms will likely be near the airport and will require train (subway), bus, or taxi transportation in order to get to the conference.
The cost to attend the Gala is only $125 per person. We are thrilled and honored that the theme “Mark of Beauty” will highlight this event. What is even more exciting is that we have Gary Mauer and his wife Beth Southard, stars of the Phantom of the Opera stage musical production performing for us at the Gala. There are also several other “surprise” guests who will be performing. More details will follow as we confirm these very special performers.
A tentative itinerary will be posted in early summer when topics are confirmed for the conference, and a detailed itinerary for the gala will also be posted at that time
Breakfast and lunch will be provided for all conference attendees and daycare will be provided during the conference lecture. No daycare will be available during the clinic appointments or the Gala.
There are three ways to register: online, by mail, or by phone. To register online, use our links. You can also download the registration form and send a check or money order with your $50 registration fee for each conference and/or clinic as soon as possible to VBF, PO Box 106, Latham, NY 12110. Registrations will be taken over the phone only if you are requesting to have all fees except the $25 non-refundable fee waived. For those who need to cancel, all fees will be returned minus the $25 non-refundable fee if you cancel on or before October 14, 2008. To register by phone, contact Basia Joyce at (518) 374-2062. If you have questions, you can email them to Basia Joyce at BasiaJim99@nycap.rr.com (subject: conference questions) or call her at (518) 374-2062. Thank you.
NOMINATE PHYSICIAN OF THE YEAR
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Meet Buddy Booby, VBF's Officical Mascot |
Deborah M. Ladue will donate 25% of all profits from sales on her website to VBF |
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| Beauty
Comes From Within |
| Purchase a Buddy Booby
Book….$15.99 softcover and $21.99 hardcover |
| Birthmark
Book FREE with $24.95 donation! |
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| Purchase
Videos from Previous Conferences Order online or by mail ![]() |
| Use goodsearch…. VBF gets one penny per search |
![]() Go GREEN and Support VBF! Vascular Birthmarks Foundation is partnering with Recycling for Charities, a non-profit organization aimed at reducing electronic waste. By donating your old cell phones, pagers, and other electronic devices you have the unique opportunity to help keep the environment clean and support VBF at the same time! Please click here to learn more about this exciting program and remember to designate VBF as your charity of choice. |
CaringBridge is a free, nonprofit web service that connects family and friends to share information, love and support during a health care crisis, treatment and recovery.
Tell a Friend about CaringBridge. |
VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE,
AND ASIAN LANGUAGES
If you can volunteer your time to translate VBF's key informational pages into
one of the above mentioned languages, or in any other language not indicated,
contact VBF President and Founder Linda Rozell-Shannon at hvbf@aol.com.
There are approximately 24 key pages. Please put "Language Translation"
in the subject line. This is very important for our families all over the world
to be able to have the highest quality of information and to have it in their
own language. We can make a difference, but we need your help to continue to
help families all over the world that are affected by vascular birthmarks.
How to
Appeal an Insurance Denial or
Request Out-of-Network Treatment (pdf)
Please
join the VBF and Texas Rangers outfielder Frank Catalanotto and his wife Barbara
as we team up to strike out vascular birthmarks!
CBS
Early Show
VBF Gets Referenced in Buddy Booby Birthmark Articles
CBS
Early Show
If you think your child has a hemangioma Click
Here...

If you think you or your child has a port wine stain Click
Here...

If you think you or your child has a venous malformation Click
Here...
Information on syndromes associated with vascular birthmarks

Multifocal Lymphangioendotheliomatosis with Thrombocytopenia
Read
about Jadyn's Journey with this rare vascular syndrome
Multifocal
Lymphangioendotheliomatosis With Thrombocytopenia
A Newly Recognized Clinicopathological Entity
Article Located at Archives of Dermatology
Multifocal
Lymphangioendotheliomatosis With Thrombocytopenia:
A Rare Cause of Gastrointestinal Bleeding in the Newborn Period
Article Located at Pediatrics
Please Note:
Dr. Waner's Office Has Moved To:
Vascular and Birthmark Institute of New York
126 West 60th Street
New York, NY 10023
Contact Clinical Coordinator directly at:
Corey R. Tournay, R.N., Clinical Coordinator
Vascular Birthmark Institute of New York
126 West 60th Street, Ground Floor
New York, NY 10023
Tel: 212-636-3977
Fax: 212-636-3979
CTournay@chpnet.org
If you have an appointment or are trying to make an appointment please make
sure you know that he is now at a new location but still in Manhattan.
VBF is Making a Difference

What Our Families Are Saying




75 Minute Miracle - Anna before and after surgery done by Dr. Waner in 75 minutes
VBF
VBF Europe
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
Sturge-Weber Syndrome Community
SWSC-Canada
Partners
Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks
Participate in our Annual Day of Awareness
Pariticpate in our
Annual Book Reading of Buddy's Booby Birthmark Book
Participate in our Kids Who Care Program
Participate in Glens Gang newsletter for kids with
birthmarks
See Dr. Waner in Europe
If you are a patient of Dr. Waner's, we are in need of before and after photos.
Click here.
YOU CAN HELP - PARTICIPATE IN VARIOUS VASCULAR
BIRTHMARKS STUDIES
Research Studies
New! Our list of research studies for vascular birthmark related research.
Low-Dose Aspirin Study for people with SWS
PWS Study
Use of the Atkins diet for children with Sturge-Weber
Syndrome
PHACE Syndrome Registry. Parents of children
with PHACE Syndrome registry
The Effect of Facial Hemangiomas on Psycho-Social Development
Publications for Parents
Find helpful documents for families
MAKE UP FOR BIRTHMARK COVERING
Nancy Roberts of www.smartcover.com will send anyone who wants to cover
a birthmark a gift certificate. Write directly to our Ask
the Make-up Expert on our experts corner and receive a free gift certificate
for $15.00 towards the purchase of any Smart Cover make up product.


Read Kay's Story (VBF Europe Rep)
Kay before SmartCover and Kay after SmartCover
Make-up by Stacey Craven
Aesthetician/Makeup Artist
Do you have any suggestions to improve the services we offer to our VBF families?
Send us your comments and suggestions!
Linda Rozell-Shannon and
her daughter Christine- The Founder of VBF Tells Her Personal Story
Meet the Webmistress
Missy Scott
Missy has worked with VBF for seven years and is responsible for all technical
and design issues of this site. If you have a question or concern about VBF's
website, please contact her.
Nevus Clinic (Non-Vascular Birthmarks) Starts at Mass. General Hospital
Dr. Martin Mihm and his team will be seeing patients with congenital nevus (giant
hairy, moles, pigmented lesions, etc.) and all other non-vascular birthmarks
(Mongolian spots, Spitz Nevus, etc.) in addition to Vascular Birthmarks, at
the Saturday clinics at the Mass. General Hospital in Boston. Dr. Mihm is combining
the Vascular Birthmarks Clinic with the Congenital Nevus clinic to form the
first combined vascular and non-vascular birthmarks clinic. Linda Shannon will
be the clinic coordinator at these combined clinics. This clinic is for adults
and children. To schedule an appointment, call Andrea at 617-724-1350.