Expert's Corner
Ask The Vascular Birthmark Expert
 VBF is proud to announce that Dr. Waner, the leading birthmark surgeon and treatment specialist will be answering emails regarding birthmark treatment. |
Ask the PWS Expert
VBF welcomes Dr. Stuart Nelson of the Beckman Laser Institute as another
one of our medical experts. Dr. Nelson will answer your questions concerning
the diagnosis and treatment of Port Wine Stains. |
Ask the Surgeon
 Meet
Dr. Gregory Levitin, partner to Dr. Milton Waner. Dr. Levitin will answer
your questions regarding the surgical treatment of all vascular birthmarks
and tumors. VBF's Ask the Surgeon! |
Ask the AVM
Expert
 VBF
is proud to have the world renown expert, Dr. Alex Berenstein as its expert
in AMVs. Send your questions concerning AVMs to him. |
Ask the Wound Care
Expert
 VBF
is proud to add Dr. Thomas Serena as our wound care expert. Please send
Dr. Serena your questions regarding wound care for an ulcerated hemangioma
or other vascular birthmark, tumor, or syndrome that requires wound care.
|
Ask the KTS Surgery Expert
 VBF is proud to welcome Dr. Giangola of NYC as our KTS surgical expert. If you have questions concerning the surgical treatment of KTS or other vascular lesions of the arms, legs, or trunk, contact him. |
Ask the Lymphatic Malformation
Expert
 VBF
is proud to announce the addition of an expert who treats Lymphatic Malformations.
Ask Dr. Edmonds your questions related to this vascular lesion. |
Ask the Military Surgeon
 VBF is proud to welcome Dr. Steve Thompson as our Military surgeon to answer questions about vascular birthmarks to our military families. He is currently working with Dr. Waner in NYC. |
Ask the Eye Specialist
 Dr.
Aaron Fay joins VBF as our eye specialist VBF's Eye Specialist will answer
questions concerning eye problems and birthmarks. |
Ask the Research Expert
 VBF
is proud to showcase Dr. Martin Mihm, Jr. as our Research Expert. Dr. Mihm
is coordinating and directing research regarding vascular birthmarks and
tumors. |
Ask the AVM and Extremities
Expert
 VBF
Welcomes Dr. Bob Rosen as our expert for all non-brain AVMs and vascular
lesions of the arms and legs. Dr. Rosen welcomes your questions concerning
these lesions. |
Ask the Internal Lesions
Expert
 VBF
is proud is welcome Dr. Steven Fishman of Boston Children's Hospital as
our Ask the Internal Lesions Expert. Ask Dr. Fishman your questions about
liver and other internal vascular lesions. |
Ask the Doctor in Spanish, Portugese, or Italian
 VBF
is excited to have a multilingual expert. Dr. Piris is from Boston and can
answer your questions in Spanish, Portugese, and Italian and of course English.
Please send your questions concerning your vascular birthmark or tumor to
Dr. Piris. |
Ask the Interventional
Radiologist
 VBF
is proud to add Dr. Orhan Konez as our expert Interventional Radiologist.
Questions regarding reading and interpreting films and treating malformations
with sclerotherapy or embollization can be sent to Dr. Orhan Konez. |
Ask the European Surgeon
 VBF is proud to add Dr. Tombris as a European surgeon expert. He treats all forms of hemangomas, port wine stains and malformations.
|
Ask the SWS Expert
 VBF
is proud to announce that Dr. Anne Comi, one of the leading experts on Sturge
Weber Syndrome will be responding to your questions concerning this syndrome.
Read more about Dr. Comi and ask her expert advice on SWS. |
Ask the KT Expert
 VBF
is proud to welcome Dr. Delfanian as our Klippel-Trenaunay expert. Send
your questions concerning KT Syndrome to Dr. Delfanian. |
Ask the PHACES Expert
 VBF is proud to welcome Dr. Denise Metry as our PHACES expert. If you have any questions regarding this syndrome, please ask Dr. Metry. |
Ask the Laser Doctor
 VBF
is proud to offer to our families a new service. VBF's Ask the Laser Doctor
offers expert advice on laser treatments for all vascular birthmarks by
Dr. Susie Astner. |
Ask the Doctor's Expert
 VBF
is proud to announce that Dr. Edwin F. Williams III will be answering emails
from physiciansregarding the diagnosis and treatment of individuals with
a vascular birthmark.
This form is intended for physicians ONLY. Parents who need assistance should
ask an expert. Only physicians will receive a reply. |
Ask the Pharmacy Doc
 VBF
is proud to offer the services of a Pharmacy Doc who worked for many years
at a Vascular Birthmarks Clinic. If you or your child has a vascular birthmark
and you have a question regarding a prescription drug, please ask Doc Helen
Figge. |
Ask the Airway Expert
 VBF
is proud to announce that Dr. Jason Mouzakes from Upstate New York has joined
us as our airway expert. Email Dr. Mouzakes with questions regarding airway
hemangiomas and other vascular lesions in the airway (throat area). |
Ask
Dr. Linda, VBF's President and Founder
 VBF
Announces "Ask Dr. Linda." Dr. Linda Rozell-Shannon is the leading
lay expert in the world on the subject of vascular birthmarks. |
Ask the CMTC Expert
 VBF is proud to have Lex van der Heijden, Chairman, CMTC, as our Cutis Marmorata Telangiectatica Congentica expert. If you or your child has CMTC, please contact Lex with your questions. |
Ask the CMTC Doctor
VBF is proud to announce the addition of Dr. Marilyn Liang of Boston Children's Hospital as our Ask the CMTC expert. Send your questions regarding CMTC to Dr. Liang |
Ask the Insurance Appeal Expert
 VBF is proud to add Barbara (Basia) Joyce as our insurance appeal expert. Please send your questions regarding your appeal or request for out-of-network treatment to Basia. |
Ask the Family Services Expert
 VBF is proud to have Corinne Barinaga, our Administrative Director, to answer emails concerning family advocacy or treatment issues. |
Ask the Developmental Specialist
 Elissa
Uretsky- Rifkin, M.Ed. CMHC is a trained developmental specialist and is
on the board of VBF. Send questions concerning hemangiomas and this topic
to Elissa |
Ask the Developmental Specialist
 Leslie
is a trained developmental specialist. Send questions concerning port wine
stains and this topic to leslie |
Ask the Adult Rep in Spanish
 VBF is proud to add Alicia as our Adult with an AVM who can translate your spanish questions to one of our docs and can answer back to you in spanish.
|
Ask the Makeup Expert
 VBF
is happy to provide you with an expert opinion regarding the use of make-up
to cover a birthmark. Ask our expert Nancy Roberts, Co-Creator of Smart
Cover Cosmetics (www.smartcover.com), your questions about make-up. |
Contact the Oral and Dental Experts
|
| Physician to Physician
Case Study Forum created by Dr. Orhan Konez |
VBF NEEDS LANGUAGE TRANSLATORS
- SPANISH, PORTUGESE, AND ASIAN LANGUAGES
Babies with Birthmarks™
 Our
newest program - guidelines for physicians
to follow to diagnose and treat vascular birthmarks with the earliest intervention.
Recent Medical Papers and Research
VBF has a great deal of research available, including
a bibliography for offline research.
|
Day of Awareness Events
|
|
Buddy Booby, VBF's official mascot, is helping to raise funds
and awareness with a global Read-athon!
|
Artwork donated to VBF by artist Meghann Remick
to help promote awareness for our May 15th International Day of
Awareness. |
100 copies of Dr. Waner and Linda Rozell-Shannon's book will be
given away FREE with a $25 donation to VBF (plus
$4.95 shipping and handling).Hurry
and order your copy while supplies last. |
|
Dr. Milton Waner asks for your help with the
VBF Day of Awareness Campaign
 Dear Friends
of VBF:
In my spare time, I like to play the guitar. It helps me to relax
and unwind but even when I'm playing my guitar I am still thinking
about helping families that have a child with a vascular birthmark
or an adult with a vascular birthmark. You too can help these
families by joining the VBF annual Day of Awareness campaign.
Every DOA event helps VBF continue their valuable work. No effort
is too small and every effort helps us all to make a difference.
Please join me and help VBF to raise awareness and to raise the
funds they need to continue their important work.
On behalf of VBF, thank you for your support.
Dr. Milton Waner |
 Linda
Shannon, VBF President and Founder
Latham, NY
100 copies of Dr. Waner and Linda Rozell-Shannon's book have been
located and will be given away FREE with a $25 donation to VBF (plus
$4.95 shipping and handling). |
Glen Ethington, VBF/SWSC Glen’s Gang and VBF Kids
Who Care
Lexington, KY
Buddy Booby’s Birthmark Read-Along and Birthday Celebration
for VBF Awareness
|
 Delia
Rooney
Belfast, Ireland
Fundraiser through her workplace
|
 Elissa
Rifkin, VBF Clinic Rep
Clayton, MO
Huge All Out Yard Sale
|
Brian and Natalie Bolinger
Corinth, TX
4th Annual North Texas Vascular Birthmarks Foundation Benefit
August 10, 2007
The Speedway Club at Texas Motor Speedway, Fort Worth, Texas
Benefit includes live entertainment, dinner, silent auction, raffles,
and Texas No Limit Hold’em
$50 per person, includes dinner
Purchase Tickets: www.bmprecruiting.com/vbf
For more information contact: Natalie Bolinger, Phone: 940-595-1800
or by Email: thebolingers@verizon.net |
Liz Sorensen, VBF Co-Director of PR
Schenectady, NY
The Daily Stroll will feature an article on VBF Awareness and Buddy
Booby’s Birthmark book.
www.thedailystroll.com
|
Donna and Evan Ducker
Mother and son authors of “Buddy Booby’s Birthmark”,
and the Sponsors of the Buddy Booby’s Birthmark Read-Along
for VBF Day of Awareness.
Visit the Buddy Booby website for
ordering information : http://www.buddyboobysbirthmark.com/ |
 Andrea
Domingues, VBF Chapter Rep for Latin America
Sao
Paulo, Brazil
May 20, 2007
3rd Annual Meeting of People with Hemangioma and Lymphangioma
Includes medical, psychological lectures and a health rights explanation.
|
 Gabrielle
Martell-Turner, VBF Rep for New Zealand
Raising Awareness by passing out VBF Fact Pamphlets |
 Kelli
Pallone
Rye, NY
Pawling Triathlon (Pawling, NY, Dutchess County)
Lakeside Park
Saturday, June 2, 2007
Swim 1/3 mile, Bike 13 miles, Run 3 miles
|
 Heather
Ely
West Melbourne, FL
Pampered Chef online fundraiser
April 9 – May 15, 2007
http://www.pamperedchef.biz/eleykitchen?page=news-detail&featureId=843245
|
 Robin
Houwman
Sioux Falls, SD
MSN VB Support Group Jewelry Sale (year-round)
The proceeds from the sale in part support the Vascular Birthmarks
Foundation.
Plus E-Trunk Show featuring jewelry from "WINGS"
E-trunk show will start on May 8th and end on the 22nd.
WINGS will donate 15% of their sales to VBF.
www.vascularbirthmarksupport.com
|
 Jan
and Andrew Dreger
Springfield, PA
On Tues. May 15th, Campbell's Boat House in Media, PA, will be donating
a percentage of sales to VBF. The staff will wear stickers, a Dollars
for Difference Box will be displayed, as well as information and
pamphlets. This event is attributed to Jan and Andrew Dreger's son,
Owen, who was born with a large right facial/lip hemangioma.
www.campbellsboathouse.com |
 Jill
Brown
April 28, 2004 is a day the Brown family will never forget. It marks
the anniversary of Aslynn Brown's surgery to remove a massive hemangioma.
Three years later, Aslynn's mother, Jill Brown, made a slideshow
to reflect on their journey and the miracle that Dr. Milton Waner
performed. Just as the Brown's will never forget that day, we will
never forget Aslynn and the Brown family for sharing their story
and bringing awareness for vascular birthmarks. Slideshow - The
Amazing Journey of Aslynn Brown |
 Stephen
Dale
New Orleans, LA
The Stephen Dale Project – To ease fear, to inspire, and to raise
awareness http://stephendaleproject.com/GiftShop.html
Purchase Stephen Dale's CD "Love at Second Sight", which contains
two songs written and sung by Stephen. A portion of the net proceeds
will be donated to the VBF. Stephen has facial PWS. |
Dr. Vittorio P. Antonacci and Charlotte Radiology
Charlotte, NC
Charlotte Radiology placed an ad in "Charlotte Parent Magazine"
to help bring awareness to the VBF and the Day of Awareness. |
 Lianne
Chase, VBF Parent Rep
Albany, NY
ACROSS THE STREET WITH THE CHASE'S.
Lianne, Kevin, Casey & Cody have invited their friends to join them
on Saturday May 12th at The Across The Street Pub for VBF night.
For $15.00 per person, they can visit with friends they have not
seen in awhile and meet new friends in an old comfortable setting...the
pub. There will be pizza, wings, chicken fingers, snacks and a cash
bar. Proceeds from the night will be donated to the VBF. |
Berea Elementary School
Montgomery, NY
Dress Down Day raises more than $200!! |
Paige Salvador - VBF Executive Director
Mount Laurel, NJ
Party for VBF Awareness Day |
Greg Antonelle, VBF Vice President
Long Valley, NJ
FirstGiving.com fundraiser
Greg is setting up a webpage in honor of his son, Nicholas, who
has LM. |
Pam and Allie Wicker
New Canaan, CT |
Sandra Peters
Appleton, WI
3rd Annual Rummage Sale, Brat Fry and Raffle for VBF Day of Awareness
Sandra is also organizing a Buddy Booby's Birthmark Read-Along at
25 schools across the nation. |
Diane Winans
Fort Worth, TX
|
Kathy Wyrick SWSC Volunteer Rep.
Lake City, FL
Raising Awareness by passing out VBF Fact Pamphlets, and Dollars
For a Difference Collection Box fundraiser
|
Megan Sand
San Diego, CA |
Jennie Olivares
Magna, UT
Buddy Booby’s Birthmark Read-Along
|
Tricia O’Connell
Murfreesboro, TN
|
Lily Mollencott
Langhome, PA
Buddy Booby’s Birthmark Read-Along
|
Marci McEnroe
Vancouver, WA
|
Kay Lewin, VBF Chapter Rep for Europe
South Yorkshire, England
May 18th - Raffle/Talent Contest/Disco with dance instruction by
David Lewin
Kay has SWS/PWS. |
Marnie Korpi
Rye Brook, NY
|
Amanda Jackson
Hartly, DE
|
Dr. Gerald Goldberg
Tucson, AZ
Purchase of Buddy Booby’s Birthmark Book, VBF We Care Bear
and $100 donation for VBF Awareness Day
|
Tom Gilbert, VBF Chapter Rep and Director of SWSC-Canada
Raising Awareness by passing out VBF Fact Pamphlets
|
Eloisa Evangelista, VBF Chapter Rep for Australia
Raising Awareness by passing out VBF Fact Pamphlets
|
Mark Eldridge
Goffstown, NJ
|
Joanmarie Dimirco
Yonkers, NY
|
Jeanette Dillow and Family
Cedar Hill, TX
$500 Donation to VBF in honor of Awareness Day
|
Jackie Burke
Columbia, SC
|
Katy Brown
Piedmont, SC
|
Kelly Barkmeier
Shawnee, KS
|
Santo Banerjee, VBF/SWSC Chapter Rep for India
West Bengal, India
Raising Awareness by passing out VBF Fact Pamphlets
|
Brenda Villa, SWSC Volunteer Rep.
Tucson, AZ
GoodSearch.com email campaign to raise funds for VBF
Brenda has SWS/PWS.
|
| On May 20th the third Meeting of People with Hemangioma and Linphangioma
was held in Brazil. The conference was organized by ABRAPHEL, a
Brazilian association for people with Hemangioma and Lynphangioma,
and took place in the Hospital A.C. Camargo, in Sao Paulo. |
Natalie and Brian Bolinger have continued to uphold the “everything
is bigger in Texas” slogan. This year the Bolinger’s
broke all VBF fund raising records. Their 4th Annual North Texas
Benefit netted nearly $34,000 for VBF.
The Bolinger’s daughter Nicole (Coco) had a compound hemangioma
at the corner of her right eye, near her nose (see photos). The
Bolingers began seeking treatment when Coco was 3 weeks old with
oral steroids. Unfortunately, the steroids did not stop the growth
but things turned around when they found Dr. Waner (he was at
Arkansas Children’s Hospital at the time). The Bolinger’s
found Dr. Waner by searching the internet and visiting the VBF
website.
|
|
  
Meet Buddy Booby, VBF's Officical Mascot
 
| 
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness
|
VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE,
AND ASIAN LANGUAGES
If you can volunteer your time to translate VBF's key informational pages into
one of the above mentioned languages, or in any other language not indicated,
contact VBF President and Founder Linda Rozell-Shannon at hvbf@aol.com.
There are approximately 24 key pages. Please put "Language Translation"
in the subject line. This is very important for our families all over the world
to be able to have the highest quality of information and to have it in their
own language. We can make a difference, but we need your help to continue to
help families all over the world that are affected by vascular birthmarks.
How to
Appeal an Insurance Denial or
Request Out-of-Network Treatment (pdf)
 Please
join the VBF and Texas Rangers outfielder Frank Catalanotto and his wife Barbara
as we team up to strike out vascular birthmarks!
Donna and Evan Ducker and Buddy Booby Make it Big...
CBS
Early Show
VBF Gets Referenced in Buddy Booby Birthmark Articles
CBS
Early Show
Information for Parents
If you think your child has a hemangioma Click
Here...
If you think you or your child has a port wine stain Click
Here...
If you think you or your child has a venous malformation Click
Here...
Information on syndromes
associated with vascular birthmarks
Multifocal Lymphangioendotheliomatosis with Thrombocytopenia
Read
about Jadyn's Journey with this rare vascular syndrome
Multifocal
Lymphangioendotheliomatosis With Thrombocytopenia
A Newly Recognized Clinicopathological Entity
Article Located at Archives of Dermatology
Multifocal
Lymphangioendotheliomatosis With Thrombocytopenia:
A Rare Cause of Gastrointestinal Bleeding in the Newborn Period
Article Located at Pediatrics
Please Note:
Dr. Waner's Office Has Moved To:
Vascular and Birthmark Institute of New York
126 West 60th Street
New York, NY 10023
Contact Clinical Coordinator directly at:
Corey R. Tournay, R.N., Clinical Coordinator
Vascular Birthmark Institute of New York
126 West 60th Street, Ground Floor
New York, NY 10023
Tel: 212-636-3977
Fax: 212-636-3979
CTournay@chpnet.org
If you have an appointment or are trying to make an appointment please make
sure you know that he is now at a new location but still in Manhattan.
VBF is Making a Difference
What Our Families Are Saying
75 Minute Miracle - Anna before and after surgery done by Dr. Waner in 75 minutes
Participate in our Annual Day of Awareness
Pariticpate in our
Annual Book Reading of Buddy's Booby Birthmark Book
Participate in our Kids Who Care Program
Participate in Glens Gang newsletter for kids with
birthmarks
See Dr. Waner in Europe
If you are a patient of Dr. Waner's, we are in need of before and after photos.
Click here.
YOU CAN HELP - PARTICIPATE IN VARIOUS VASCULAR
BIRTHMARKS STUDIES
Research Studies
New! Our list of research studies for vascular birthmark
related research.
Low-Dose Aspirin Study for people with SWS
NEW PHACES Study
PWS Study
Use of the Atkins diet for children with Sturge-Weber
Syndrome
PHACE Syndrome Registry. Parents of children
with PHACE Syndrome registry
The Effect of Facial Hemangiomas on Psycho-Social
Development
Publications for Parents
Find helpful documents for families
MAKE UP FOR BIRTHMARK COVERING
Nancy Roberts of www.smartcover.com will send anyone who wants to cover
a birthmark a gift certificate. Write directly to our Ask
the Make-up Expert on our experts corner and receive a free gift certificate
for $15.00 towards the purchase of any Smart Cover make up product.
 
Read Kay's Story (VBF Europe Rep)
Kay before SmartCover and Kay after SmartCover
Make-up by Stacey Craven
Aesthetician/Makeup Artist
Do you have any suggestions to improve the services we offer to our VBF families?
Send us your comments and suggestions!
Linda Rozell-Shannon and
her daughter Christine- The Founder of VBF Tells Her Personal Story
Meet the Webmistress
Missy Scott
Missy has worked with VBF for seven years and is responsible for all technical
and design issues of this site. If you have a question or concern about VBF's
website, please contact her.
Nevus Clinic (Non-Vascular Birthmarks) Starts at Mass. General Hospital
Dr. Martin Mihm and his team will be seeing patients with congenital nevus (giant
hairy, moles, pigmented lesions, etc.) and all other non-vascular birthmarks
(Mongolian spots, Spitz Nevus, etc.) in addition to Vascular Birthmarks, at
the Saturday clinics at the Mass. General Hospital in Boston. Dr. Mihm is combining
the Vascular Birthmarks Clinic with the Congenital Nevus clinic to form the
first combined vascular and non-vascular birthmarks clinic. Linda Shannon will
be the clinic coordinator at these combined clinics. This clinic is for adults
and children. To schedule an appointment, call Andrea at 617-724-1350.
|
