before and after of hemangioma before and after of PWS before and after of venous malformation before and after of AVM before and after of lymphatic malformation CMTC sturge-weber syndrome kts PHACE

Expert's Corner

Ask The Vascular Birthmark Expert
Dr. WanerVBF is proud to announce that Dr. Waner, the leading birthmark surgeon and treatment specialist will be answering emails regarding birthmark treatment.
Ask the PWS Expert
Dr.Nelson VBF welcomes Dr. Stuart Nelson of the Beckman Laser Institute as another one of our medical experts. Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

Ask the Surgeon
Dr.LevitinMeet Dr. Gregory Levitin, partner to Dr. Milton Waner. Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors. VBF's Ask the Surgeon!

Ask the AVM Expert
Dr. BerensteinVBF is proud to have the world renown expert, Dr. Alex Berenstein as its expert in AMVs. Send your questions concerning AVMs to him.
Ask the Wound Care Expert
Dr. SerenaVBF is proud to add Dr. Thomas Serena as our wound care expert. Please send Dr. Serena your questions regarding wound care for an ulcerated hemangioma or other vascular birthmark, tumor, or syndrome that requires wound care.
Ask the KTS Surgery Expert
Dr. GiangolaVBF is proud to welcome Dr. Giangola of NYC as our KTS surgical expert. If you have questions concerning the surgical treatment of KTS or other vascular lesions of the arms, legs, or trunk, contact him.
Ask the Lymphatic Malformation Expert
Dr. EdmondsVBF is proud to announce the addition of an expert who treats Lymphatic Malformations. Ask Dr. Edmonds your questions related to this vascular lesion.
Ask the Military Surgeon
Dr. ThompsonVBF is proud to welcome Dr. Steve Thompson as our Military surgeon to answer questions about vascular birthmarks to our military families. He is currently working with Dr. Waner in NYC.
Ask the Eye Specialist
Dr. FayDr. Aaron Fay joins VBF as our eye specialist VBF's Eye Specialist will answer questions concerning eye problems and birthmarks.
Ask the Research Expert
Dr.MihmVBF is proud to showcase Dr. Martin Mihm, Jr. as our Research Expert. Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.
Ask the AVM and Extremities Expert
VBF Welcomes Dr. Bob Rosen as our expert for all non-brain AVMs and vascular lesions of the arms and legs. Dr. Rosen welcomes your questions concerning these lesions.
Ask the Internal Lesions Expert
Dr. FishmanVBF is proud is welcome Dr. Steven Fishman of Boston Children's Hospital as our Ask the Internal Lesions Expert. Ask Dr. Fishman your questions about liver and other internal vascular lesions.
Ask the Doctor in Spanish, Portugese, or Italian
VBF is excited to have a multilingual expert. Dr. Piris is from Boston and can answer your questions in Spanish, Portugese, and Italian and of course English. Please send your questions concerning your vascular birthmark or tumor to Dr. Piris.
Ask the Interventional Radiologist
Dr. KonezVBF is proud to add Dr. Orhan Konez as our expert Interventional Radiologist. Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.
Ask the European Surgeon
Dr. TomrisVBF is proud to add Dr. Tombris as a European surgeon expert. He treats all forms of hemangomas, port wine stains and malformations.
Ask the SWS Expert
Dr. ComiVBF is proud to announce that Dr. Anne Comi, one of the leading experts on Sturge Weber Syndrome will be responding to your questions concerning this syndrome. Read more about Dr. Comi and ask her expert advice on SWS.
Ask the KT Expert
Dr. DelfanianVBF is proud to welcome Dr. Delfanian as our Klippel-Trenaunay expert. Send your questions concerning KT Syndrome to Dr. Delfanian.
Ask the PHACES Expert
Dr. MetryVBF is proud to welcome Dr. Denise Metry as our PHACES expert. If you have any questions regarding this syndrome, please ask Dr. Metry.
Ask the Laser Doctor
Dr.AstnerVBF is proud to offer to our families a new service. VBF's Ask the Laser Doctor offers expert advice on laser treatments for all vascular birthmarks by Dr. Susie Astner.
Ask the Doctor's Expert
Dr. WilliamsVBF is proud to announce that Dr. Edwin F. Williams III will be answering emails from physiciansregarding the diagnosis and treatment of individuals with a vascular birthmark.
This form is intended for physicians ONLY. Parents who need assistance should ask an expert. Only physicians will receive a reply.
Ask the Pharmacy Doc
Helen FiggeVBF is proud to offer the services of a Pharmacy Doc who worked for many years at a Vascular Birthmarks Clinic. If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.
Ask the Airway Expert
Dr. MouzakesVBF is proud to announce that Dr. Jason Mouzakes from Upstate New York has joined us as our airway expert. Email Dr. Mouzakes with questions regarding airway hemangiomas and other vascular lesions in the airway (throat area).
Ask Dr. Linda, VBF's President and Founder
Ask the VBF FounderVBF Announces "Ask Dr. Linda." Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.
Ask the CMTC Expert
Lex van der Heijden, Chairman, CMTCVBF is proud to have Lex van der Heijden, Chairman, CMTC, as our Cutis Marmorata Telangiectatica Congentica expert. If you or your child has CMTC, please contact Lex with your questions.
Ask the CMTC Doctor
VBF is proud to announce the addition of Dr. Marilyn Liang of Boston Children's Hospital as our Ask the CMTC expert. Send your questions regarding CMTC to Dr. Liang
Ask the Insurance Appeal Expert
Barbara JoyceVBF is proud to add Barbara (Basia) Joyce as our insurance appeal expert. Please send your questions regarding your appeal or request for out-of-network treatment to Basia.
Ask the Family Services Expert
VBF is proud to have Corinne Barinaga, our Administrative Director, to answer emails concerning family advocacy or treatment issues.
Ask the Developmental Specialist
Elissa Uretsky- Rifkin, M.Ed. CMHC is a trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa  
Ask the Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to leslie    
Ask the Adult Rep in Spanish
AliciaVBF is proud to add Alicia as our Adult with an AVM who can translate your spanish questions to one of our docs and can answer back to you in spanish.
Ask the Makeup Expert
Ask the Makeup ExpertVBF is happy to provide you with an expert opinion regarding the use of make-up to cover a birthmark. Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

Contact the Oral and Dental Experts


Physician to Physician Case Study Forum created by Dr. Orhan Konez

 

VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE, AND ASIAN LANGUAGES

Babies with Birthmarks™

Babies with BirthmarksOur newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

VBF has a great deal of research available, including a bibliography for offline research.

Vascular Birthmarks Foundation Press Releases and News

Evan Ducker Featured on Bay News 9
See the story here

 

Brown Family's Slideshow

April 28, 2004 is a day the Brown family will never forget. It marks the anniversary of Aslynn Brown's surgery to remove a massive hemangioma. Three years later, Aslynn's mother, Jill Brown, made a slideshow to reflect on their journey and the miracle that Dr. Milton Waner performed.

Just as the Brown's will never forget that day, we will never forget Aslynn and the Brown family for sharing their story and bringing awareness for vascular birthmarks.

Slideshow - The Amazing Journey of Aslynn Brown

Donna and Evan Ducker and Buddy Booby Make it Big...

CBS Early Show
CBS Affiliate Story

VBF Gets Referenced in Buddy Booby Birthmark Articles

CBS Early Show
CBS Affiliate Story

PRESS RELEASE

Vascular Birthmarks Foundation Founder to make appearance in Binghamton

Monday December 4, 9:00 am ET

Binghamton, NY – December 4, 2006 – FACES Publications, LLC announced today that Vascular Birthmarks Foundation founder Linda Rozell Shannon will make an appearance at its annual Book Release Party on Thursday December 7, 2006 at 7:00 p.m. at the Anthony Brunelli Fine Arts Gallery, 186 State Street in Binghamton.

Rozell Shannon is the President of the Vascular Birthmarks Foundation and is the world's leading lay expert in the field of Vascular Birthmarks. Her remarkable dedication and outreach have made treatment possible for thousands of children all over the world who suffer from various birthmark anomalies. Rozell Shannon wrote the forward in the 2007 edition of FACES of the Southern Tier which will be showcased at the release party.

“We are extremely honored to be hosting Linda Rozell Shannon in Binghamton this week. She has made a phenomenal impact on thousands of children and families all over the world with her tireless efforts in her assistance with finding treatment for vascular birthmarks”, said Roger L. Brooks, editor-in-chief of FACES Publications. “I can attest first hand to the tremendous amount of information my wife and I received from the VBF website when we were trying to find treatment for our daughter in 2002.”

In 1995, with the help of Dr. Martin Mihm, Rozell Shannon started the Vascular Birthmarks Foundation. In 1996, she began her work on a book entitled, "Birthmarks, A Guide to Hemangiomas and Vascular Malformations." Published in 1997, it is still the only publication available on the subject that is written for parents.

For more information on vascular birthmarks, please visit the website at www.birthmarks.org. If you would like to interview Linda Rozell Shannon please contact Roger L. Brooks to make arrangements.

Contact:
Roger L. Brooks
Editor-in-Chief
FACES Publications, LLC
49 Court Street, 2nd FL
Binghamton, NY 13901
Phone: 607.723.0324/ 607.343.7864
http://www.tierfaces.com
roger.brooks@tierfaces.com

First Ever All Birthmarks Conference -- A Chance of a Lifetime

http://prweb.com/releases/2006/10/prweb446886.htm

VBF President and Founder Linda Rozell-Shannon is quoted and referenced in the May 2006 issue of Babytalk magazine (page 15)...a small blurb on birthmark news.

VBF Celebrates 3rd Annual International Awareness Day

Get the press release (pdf)

Interview with Donna Ducker, author of Buddy Booby's Birthmark on Connecticut's News Leader

See the interview

News


Changes, Chance and Charity – Linda’s saga

Read how Linda Rozell-Shannon was inspired to found the VBF and later became the recipient of the prestigious Jefferson Award, considered the Nobel Prize for public and community service.

VBF President/Founder Featured As Walden University's "Making A Difference" Student

Read more here

VBF Gets Million Dollar Donation

VBF President and Founder Linda Rozell-Shannon announced today (November 16, 2005) that an anonymous donation of $1,000,000 for research and physician education has been donated to VBF with Dr. Milton Waner as overseer of the research and physician education programs. Research projects are currently being defined and we will be reporting to you on these programs as they are finalized.

NOTE: This donation is designated for Research and Physician Education. We are very excited about the great strides this money will make in these two program areas. However, we continue to rely on your generous donations to fund our daily operations. Please continue to help us to make a difference by making your annual charitable donation to VBF to fund our daily operations.

First Research Project Funded -
Hear From The Chief Investigator
About The Hope For A Drug to Shrink Hemangiomas And
Eliminate The Need For Surgery!!!

This is a collaborative effort that includes the team of Dr. Milton Waner, Dr. Lou Fink, Dr. Ma, and Dr. Theresa O.

Research Grant Application


Read more here

Linda Rozell-Shannon speaks to Capital News 9!

See the video here

 

 

Find a PhysicianFind a Parent ResourceBuddy Booby
Meet Buddy Booby, VBF's Officical Mascot

  

Mothers' Day is May 11th
Order flowers ... VBF receives 12% from each order

Help support VBF by purchasing your flowers from Flowerpetal.com.

Beauty Comes From Within
Purchase a pendant or pin….$29.95
Order online or by mail

Vascular Birthmark Support .com offers beautiful jewelry as well as key chains and picture frames with proceeds going to benefit vascular birthmark awareness and fundraising. Visit Vascular Birthmark Support. com today!
Pendant

Purchase silicone bracelets….$5.00
Order online or by mail

Purchase a Buddy Booby Book….$15.99 softcover and $21.99 hardcover

Birthmark Book FREE with $24.95 donation!
Donate online or by mail

Purchase a Birthmark Buddy $15.00
Order online or by mail
VBF Birthmark Bear

Greeting Cards to Benefit VBFGreeting Card Image

 
Purchase Videos from Previous Conferences
Order online or by mail

Use goodsearch…. VBF gets one penny per search
Good Search
www.goodsearch.com


Make Your United Way Pledge to VBF

Go GREEN and Support VBF! Vascular Birthmarks Foundation is partnering with Recycling for Charities, a non-profit organization aimed at reducing electronic waste. By donating your old cell phones, pagers, and other electronic devices you have the unique opportunity to help keep the environment clean and support VBF at the same time! Please click here to learn more about this exciting program and remember to designate VBF as your charity of choice.

VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE, AND ASIAN LANGUAGES

If you can volunteer your time to translate VBF's key informational pages into one of the above mentioned languages, or in any other language not indicated, contact VBF President and Founder Linda Rozell-Shannon at hvbf@aol.com. There are approximately 24 key pages. Please put "Language Translation" in the subject line. This is very important for our families all over the world to be able to have the highest quality of information and to have it in their own language. We can make a difference, but we need your help to continue to help families all over the world that are affected by vascular birthmarks.

How to Appeal an Insurance Denial or
Request Out-of-Network Treatment (pdf)

The Catalanotto FamilyPlease join the VBF and Texas Rangers outfielder Frank Catalanotto and his wife Barbara as we team up to strike out vascular birthmarks!

Donna and Evan Ducker and Buddy Booby Make it Big...

CBS Early Show

VBF Gets Referenced in Buddy Booby Birthmark Articles

CBS Early Show

Information for Parents

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

Information on syndromes associated with vascular birthmarks

Multifocal Lymphangioendotheliomatosis with Thrombocytopenia
Read about Jadyn's Journey with this rare vascular syndrome

Multifocal Lymphangioendotheliomatosis With Thrombocytopenia
A Newly Recognized Clinicopathological Entity
Article Located at Archives of Dermatology

Multifocal Lymphangioendotheliomatosis With Thrombocytopenia:
A Rare Cause of Gastrointestinal Bleeding in the Newborn Period
Article Located at Pediatrics

Please Note:
Dr. Waner's Office Has Moved To:
Vascular and Birthmark Institute of New York
126 West 60th Street
New York, NY 10023
Contact Clinical Coordinator directly at:

Corey R. Tournay, R.N., Clinical Coordinator
Vascular Birthmark Institute of New York
126 West 60th Street, Ground Floor
New York, NY 10023
Tel: 212-636-3974
Fax: 212-636-3979
CTournay@chpnet.org

If you have an appointment or are trying to make an appointment please make sure you know that he is now at a new location but still in Manhattan.

VBF is Making a Difference

What Our Families Are Saying



75 Minute Miracle - Anna before and after surgery done by Dr. Waner in 75 minutes

Chapters of the VBF

VBF
VBF Europe
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks

Participate in our Annual Day of Awareness
Pariticpate in our Annual Book Reading of Buddy's Booby Birthmark Book
Participate in our Kids Who Care Program
Participate in Glens Gang newsletter for kids with birthmarks

See Dr. Waner in Europe
If you are a patient of Dr. Waner's, we are in need of before and after photos. Click here.

YOU CAN HELP - PARTICIPATE IN VARIOUS VASCULAR BIRTHMARKS STUDIES
Research Studies

New! Our list of research studies for vascular birthmark related research.

Low-Dose Aspirin Study for people with SWS

NEW PHACES Study

PWS Study

Use of the Atkins diet for children with Sturge-Weber Syndrome

PHACE Syndrome Registry. Parents of children with PHACE Syndrome registry

The Effect of Facial Hemangiomas on Psycho-Social Development

 

Publications for Parents
Find helpful documents for families

MAKE UP FOR BIRTHMARK COVERING
Nancy Roberts of www.smartcover.com will send anyone who wants to cover a birthmark a gift certificate. Write directly to our Ask the Make-up Expert on our experts corner and receive a free gift certificate for $15.00 towards the purchase of any Smart Cover make up product.


Read Kay's Story (VBF Europe Rep)
Kay before SmartCover and Kay after SmartCover
Make-up by Stacey Craven
Aesthetician/Makeup Artist

Do you have any suggestions to improve the services we offer to our VBF families? Send us your comments and suggestions!

Christine, today Linda Rozell-Shannon and her daughter Christine- The Founder of VBF Tells Her Personal Story

Meet the Webmistress
Missy Scott
Missy has worked with VBF for seven years and is responsible for all technical and design issues of this site. If you have a question or concern about VBF's website, please contact her.

Nevus Clinic (Non-Vascular Birthmarks) Starts at Mass. General Hospital
Dr. Martin Mihm and his team will be seeing patients with congenital nevus (giant hairy, moles, pigmented lesions, etc.) and all other non-vascular birthmarks (Mongolian spots, Spitz Nevus, etc.) in addition to Vascular Birthmarks, at the Saturday clinics at the Mass. General Hospital in Boston. Dr. Mihm is combining the Vascular Birthmarks Clinic with the Congenital Nevus clinic to form the first combined vascular and non-vascular birthmarks clinic. Linda Shannon will be the clinic coordinator at these combined clinics. This clinic is for adults and children. To schedule an appointment, call Andrea at 617-724-1350.

Mission Statement: An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment and provides informational resources as well as sponsors physician education, research, and programs that promote acceptance for living with a birthmark.

español | deutsch | français | italiano | português

DISCLAIMER
Information accessed through the VBF is presented in summary form in order to impart general information relating to the diagnosis and treatment of vascular birthmarks. Such information is not complete and should not be used as a substitute for a consultation or visit with your physician or other health care provider. Information accessed through VBF website is not exhaustive and does not cover every aspect of vascular birthmarks. VBF makes no warranty as to the information's completeness, reliability or accuracy. Should you have any health care related questions regarding this matter, please see your physician or other health care provider promptly.

Information accessed through the VBF website is provided "AS IS" and without warranty, express or implied. All implied warranties of merchantability and fitness for a particular use or purpose are hereby excluded. VBF shall not be liable under any theory or indemnity. In no event shall VBF be liable for any damages, direct or indirect, and all other damages, direct or indirect, special, incidental, consequential or punitive, are hereby excluded even if VBF has been advised of the possibility of such damages.

|Contact the VBF|

Founded by:
Linda Rozell Shannon
President / Founder
© 2000-2008, by Linda Rozell Shannon. All Rights Reserved.
VBF is a fully approved not-for-profit. Your donations are tax deductible.
Federal Tax ID 16-1515227

Site Design and Maintenance performed by M. Scott.