Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




Annual Conference


The Vascular Birthmarks Foundation
along with the

Present the 2009 Port Wine Stain and Vascular Birthmarks Conference

VBF Celebrates 15th Anniversary October 2009

Meet Devion, VBF's Kid with KT
 
Diana, one of VBF's Orphans With Birthmarks

VBF is very excited to announce that despite the economy the Port Wine Stain and Vascular Birthmarks Conference will be held in Irvine, California on Friday, October 9th and Saturday, October 10th. This conference will take place at the Beckman Laser Institute in Irvine, and at the Island Hotel minutes away in Newport Beach, California. Families should fly into the John Wayne Airport (closest to the event). There is no shuttle to the hotel, but a bus or cab is only $20.

 

We are also very excited to announce that VBF will be celebrating its 15th Anniversary in California this year! Come join us for a piece of cake to help us celebrate that “We Are Making A Difference.”

 

ALL FREE HOTEL ROOMS ARE GONE BUT CONFERENCE AND CLINIC APPOINTMENTS ARE STILL AVAILABLE - STILL TIME TO REGISTER TO ATTEND

 

Dr. J. Stuart Nelson, along with the Beckman Laser Institute will be co-sponsors of this year’s conference. A very exciting research announcement will be presented on Friday evening by VBF Co-Medical Directors Dr. Martin Mihm and Dr. J. Stuart Nelson.

 

This year, the first 50 families that register will have meals included and FREE lodging for the Friday night and a $100 discount on Saturday night (total cost is $208.09 so families only pay $108.09 if they choose to stay the second night). Lodging will be at The Island Hotel, www.theislandhotel.com. In addition, the conference fee is only $50 per family and the clinic fee is only $50 per family. Anyone who cannot pay the clinic or conference fee can request that the fees be waived. A $25 deposit is required for each family registering for the conference and this fee cannot be waived. This deposit is non-refundable.

 

2009 VBF/BLI Conference Itinerary

 

Friday October 9th at the Island Hotel
5:30-6:15 - Registration Check In - Light Food - Mingle families/doctors (in grand ballroom area)
6:15-6:30 – Welcome – Dr. Linda Rozell-Shannon and Dr. Stuart Nelson
6:30-7:15 - Broadway Review - Musicians with Birthmarks (grand ballroom area)
7:15-7:45 - Keynote Address – Dr. Martin Mihm and Dr. Stuart Nelson – Update Concerning New Treatments for Vascular Birthmarks
7:45-8:00 - Awards Presentations – Dr. Stuart Nelson and Dr. Linda Rozell-Shannon
8:00-9:00 - Breakout Sessions – Informal Qs and As Sessions with Physicians – (Hemangiomas, PWS, Malformations, Syndromes, Adolescent Support Group)

 

Saturday October 10th at the Island Hotel
7:30-8:30 Registration, check-in, daycare registration and drop off, complimentary continental breakfast
8:30-12:30 Conference Moderator – Dr. Stuart Nelson
8:30-8:50 Classification of Different Vascular Malformations – Dr. Martin Mihm
8:50-9:10 Laser treatment of Port Wine Stains – Dr. Stuart Nelson
9:10-9:30 Pediatric Anesthesia in Patients Receiving Multiple Procedures - Dr. Avi Rosenbaum
9:30-9:50 Sturge Weber Syndrome – Diagnosis and Treatment – Dr. Anne Comi
9:50-10:10 Diagnosing and Treating Klippel Trenaunay Syndrome – Dr. Delfanian
10:10-10:30 Treating Extremity Lesions/KTS – Dr. Bob Rosen
10:30-10:40 BREAK
10:40-11:20 Hemangiomas: When is Medical, Laser or Surgical Therapy Indicated? Drs. Ignacio Sanchez-Carpintero, Stuart Nelson and Greg Levitin
11:20-11:40 Hemangiomas of the Orbit – Dr. Milton Waner
11:40-12:00 Interventional Approach to Hemangiomas and Malformations – Dr. Alex Berenstein
12:00-12:15 Psychosocial Implications of Vascular Birthmarks (Rozell-Shannon, Graff, Rifkin, & Barinaga)
12:15-1:00 Lunch – Lunch boxes will be provided for faculty, conference/clinic attendees and workers/volunteers. NOTE: Parents must pick up children before daycare closes at 12:10

 

Clinic at the Beckman Laser Institute
Note: Shuttle will be provided between BLI and Hotel
1:00-6:00 Clinic (4 teams) Hemangiomas, PWS, Malformations, Syndromes

 


Important Note: It is very important that you register as early as possible. The first 50 families to register and to send a $25 registration fee will be guaranteed lodging for FREE for Friday night (one room)and a $100 credit for Saturday night and meals (welcome reception on Friday, and breakfast and lunch on Saturday). The amount families pay for the 2nd night is $108.09, because the total is $208.09 but $100 will be paid toward the 2nd night by conference sponsors. As indicated, first night is free and second night will only cost $108.09. No incidentals will be covered such as food in room, telephone, movies. Families must cover all of these. Shuttle to and from the airport is also not included but usually averages $20 each way. The registration form includes more detail.

 

Food is easily accessible at the hotel and at nearby restaurants for all families who wish to attend, but who do not qualify for early registration benefits. No one will be turned away from attending the conference and/or clinic but everyone who wishes to attend must register and pay a $25 registration fee. The early registrants will be notified by mail that your meals and lodging are included and we will likely post on the websites when the spaces are filled. Please visit www.birthmark.org for updates or to register by phone (must have a credit card for phone-in registration) contact Basia Joyce, VBF Ex. Asst. at Home – 518 374-2062, Cell – 518- 495-3938 or by email at: BasiaJim99@nycap.rr.com

 

You can now register on line or download the registration form from the link below and send it in with your $25 registration fee as soon as possible to VBF, PO Box 106, Latham, NY 12110. Please direct all questions to Basia at the above indicated phone numbers or email address.

 

Download the registration form

 

Register online for the conference

 

Register online for the clinic

 

Physician's Registration