✔ American Academy of Pediatrics Issues New Guidelines for Hemangiomas Sept 2015
✔ Dr. Linda Pioneers Letter Signed Jointly by AAP, AAD, SPD, ASDSA to help families denied insurance
✔ Crystal Hodges Joins VBF as Social Media Coordinator and Ask/Accept Anti-Bullying Campaign Manager
✔ VBF Social Media Team In The News
✔ Adults with PWS Study Participants Needed
✔ VBF Congratulates Four Scholarship Winners
✔ Dr. Robert Rosen and his Vascular Anomalies Team open new center in New York
✔ AAP President Signs Letter of Medical Necessity for Treatment of Vascular Anomalies
✔ Dr. Ana Duarte explains new treatment for infantile hemangiomas during TV interview
✔ VBF 20th Anniversary Gala and Conference A Huge Success !!!
✔ Joe Tartamella Participates in Frank Catalanotto Foundation Celebrity Softball Game
✔ Catalanotto Foundation Sporting Event Featured in Smithtown News! (pdf)
✔ Catalanotto Foundation teams up with VBF
✔ Syneron Candela Launches "Changing Lives" Program At AAD to Benefit VBF
Wells Fargo donation to VBF in recognition for its international work
Alex and Ani Fundraiser to benefit the Vascular Birthmarks Foundation
Saratoga Springs, NY Alex and Ani Event to Benefit VBF a Huge Success!
Third Annual Olivia’s Walk for Birthmarks in Pennsylvania a Huge Success!
VBF Humanitarian Trip to India a Huge Success
Vascular Birthmarks Foundation to be April’s Featured Charity at SEFCU!!!
Dr. Linda inducted into Rensselaer HS Hall of Fame on 4/21/13 for her work with the VBF
VBF Fundraiser in City Island, New York!
Alex And Ani
Fundraiser in Saratoga Springs was a huge hit!
Fundraiser at Stew Leonard's, Norwalk, CT a huge success!
Cut-A-Thon Huge Success Raising $620
Isabel Spano, the owner of the salon, Belisa Salon, hosted a Cut-a-thon on September 23, 2012. They raised $620.00 to benefit VBF! Thank you!
THANK YOU TO EVERYONE WHO HELPED MAKE THE 4th ANNUAL VBF WALK/RUN A HUGE SUCCESS
Thanks to everyone who made the 2011 VBF Conference in Irvine, CA. a HUGE success!
Dr. Nelson, VBF Co-Medical Director, in the news!
Youth raises awareness about brother's Lymphatic Malformation
THANK YOU TO EVERYONE WHO HELPED MAKE THE 4th ANNUAL VBF WALK/RUN A HUGE SUCCESS
Participates in SEFA and United Way
Join us for a live webinar at noon on December 14, 2011 with Patricia Burrows, M.D., to learn more about Vascular Anomalies and treatment options available to patients suffering from them.
Frank Catalanotto Foundation Golf Event to Benefit VBF
2011 VBF Walk/Run Raises $17,000
Thank you to everyone who walked, run, or volunteered to make our 3rd Annual
Walk/Run for Birthmarks a success.
VBF would like to thank its sponsors:
Mirkovic', Lambert & Teal, a financial advisory practice of Ameriprise Financial
The Center for Facial Plastic Surgery & University Ear, Nose & Throat of Northeastern
Silhouette Eye Studio
The Lia Auto Group
Joe Condon—Albany Broadcasting B95.5
Jaeger and Flynn Associates, Inc
Albany Mulit-Medicine Group
Erle Daniels of Race With Us
A special thanks to the following businesses for their generous donations:
BJ’s Wholesale Club, Goldstocks Sporting Goods, Stasior & Stasior Eye Care Specialists,
Philip Alexander Jewelers, Target, Colonie Beverage and Allstars Academy.
Thank you to our event Co-Chairs, Basia Joyce and Barbara Rothaupt. Also,
a special thanks to all the volunteers who helped us raise these needed funds
to continue our work.
Barbara Rothaupt and her mother, Pat, and other registration
Basia and Celebrity Announcer Joe
Buddy Booby (played by Kristen Melendez)
Christine Shannon and Naiomi R
Chef Fred Palmateer
Chef Jim Joyce
Start of Race - They're Off !
Crossing Finish Line !
Donna and Ethan Watson (2009 Birthmark Champion)
Dr. Linda with Race Champions
VBF Honorary Chairs - Frank (Retired 2010 NY Mets)
and Barbara Catalanotto
Frank Catalanotto with Walk/Run Attendees/Fans
Team Chasing the Cure
VBF Makes Times Square in NYC
http://www.more.com/11079/15265-more-reinvention-story-contest-winner VBF President and Founder wins MORE Magazine Reinvent Contest
VBF Launches 3rd Annual Day of Awareness Walk/Run for Birthmarks Challenge
VBF is excited to announce that our 3rd Annual Challenge – Walk/Run for
Birthmarks – will be held on Friday, May 13th, 5:00pm, at the Crossings
of Colonie, in Colonie, New York. Last year’s event was a huge success
with over 300 attendees. We are optimistic that we will succeed that total this
For the second year in a row we are proud to announce that our 2011 Walk/Run
event is sponsored by Mirkovic, Lambert & Teal, A Financial Advisory Practice
of Ameriprise Financial Services, Inc. We are also proud to announce that our
2011 Birthmark Champion is Kaylee, (her grandparents are local and sought help
from VBF for her treatment).
2011 Walk/Run Birthmark Champion
Kaylee before surgery
Kaylee after surgery
Please join our 5k race, or 1 mile walk teams. You can register on-line by
going to the links below. This event is going to be a time of great family fun.
We are going to have a bouncy bounce, tumbling tykes, face painting, music,
food, and vascular birthmark “Experts” who will be on hand to answer
questions for free about the diagnosis and treatment of hemangiomas and vascular
This year we are also adding a “Kids Fun Run” for the children.
And, don’t miss out on the free T-Shirts to the first 300 registrants.
It’s only $15 per person, $10 per student or teams members with 5 or more,
or $30 per family.
Another new addition this year is our walk/run JOIN ME page. You can see links
below to individuals who have created their own walk/run sponsorship page. If
you can’t make our event in person, please sponsor one of our walkers/runners.
So far we have VBF President/Founder Dr. Linda Rozell-Shannon who will be walking
for Team Christine (her daughter). We also have Basia Joyce, VBF Executive Asst.
who will be walking for Team Anna (her daughter) and…..
We are hoping for at least 25 “birthmark” teams to walk/run in
this year’s event and 10 JOIN ME individuals. If you or a loved one has
or had a vascular birthmark, put a team together and join us. Or, we will create
a JOIN ME page for you so that you can invite your friends from all over the
world to sponsor you in our walk/run event. This is a great way for you to help us
reach this year’s goal of $20,000.
The 5k race course is a sanctioned course and certificates will be presented
to the standard race category winners. We will also be presenting a certificate
to the largest “birthmark” team.
Bring your friends, family, office, club, and classmates. Everyone is welcome.
If you can’t walk or run, volunteer to work at one of our booths. Please
help us to continue to make a positive difference in the lives of families affected
by a vascular birthmark. And, if you can’t attend, please sponsor one
of our Walk/Run for Birthmarks Challenge JOIN ME individuals listed on the links
above. As always, thank you for helping to make a difference for families affected
by a vascular birthmark.
Hot off the press....VBF Honorary Chairs Frank and Barbara Catalanotto will be attending the VBF 3rd Annual Walk/Run for Birthmarks. Frank retired from the New York Mets in 2010, but he will be on hand at the walk/run to sign autographs (with proceeds to benefit VBF). His wife, Barbara, will be participating in the 5k race.
Come join our walk/run and get a chance to meet a pro baseball player and get his autograph. You can also get your picture taken with Frank.
VBF is honored to have Frank and Barbara Catalanotto as our Honorary Chairs. Their daughter, Morgan, had a hemangioma on her nose and they were referred to VBF for support and treatment. Once they contacted VBF, they never left. That was 10 years ago and they have been critical in raising awareness and helping raise the funds needed to continue our work.
Don't miss out on this incredible opportunity. Walk/Run with us and also get a change to meet a pro baseball player ! ! ! !
Sign up today ! ! !
To register, go to
Dr. Linda (VBF President/Founder) JOIN ME Page
Basia Joyce (VBF Exec. Asst) JOIN ME Page
Team Lockwood JOIN ME Page
Sicolo Family JOIN ME Page
Olga Bachuk JOIN ME Page
Danielle and Trey Rippy JOIN ME Page
Team Ethan Watson JOIN ME Page
Team Chase JOIN ME Page
Greg and Melanie Falco JOIN ME Page
VBF Russia Facilitates Treatment
2010 Gala/Conference a Huge Success
Scroll down for Buddy Booby and VBF link
MARK OF BEAUTY PENDANT DESIGNED FOR VBF
VBF is proud to display this beautiful 14k white gold and diamond pendant designed exclusively for VBF by Tom O'Brien, owner of the Albany Diamond Center in Albany, New York. The pendant will be raffled at the VBF Mark of Beauty Gala on Friday, October 8th. Raffle tickets are $50. Anyone interested in purchasing a raffle ticket can make a $50 donation to VBF and note that the donation is for the pendant raffle. We will put your name on a raffle ticket and enter you into the drawing. The value of the pendant is $1,000.
Microskin - Birthmarks Latest
Dr. Geronemus on Dr. Oz
Hyleri Katzenberg: Not Just a Birthmark: The Struggle Against Vascular Deformities
Vascular Birthmarks Foundation to Host 'Mark of Beauty' Gala and Medical Conference
VBF Thanks Debbie Longtin (and her band Prolonged Exposure as well as bands What-ever! and T.R.O.U.B.L.E.) along with former NFL Player Tim Sherwin for volunteering their time and efforts for our first Bands for Birthmarks event. Additionally, VBF would like to thank the Polish Community Center for the use of their facility, all the volunteers, and our corporate sponsors.
Anna Joyce, with her mother, VBF Ex. Asst. Basia Joyce
present one of the bands with their guitar plaque from VBF
Bouncey Bounce was a usual hit with all the kids.
Skittles the clown with Kristen, Christine Shannon
(daughter of President/Founder Dr. Linda) and in the background is AJ
Palmateer, our first Buddy Booby Costumer!
Here are all four clowns with Buddy Booby in full
Debbie Lontin (lead singer with Prolonged Exposure)
and Band Coordinator shows plaque presented by VBF
Dr. Linda (with sunglasses) and the tall one is former
NFL Player Tim Sherwin plus some VBF friends
One of the bands participating in this year's event
The kids line up for the Receiving Clinic with former NFL player Tim Sherwin
Even the girls wanted in on the Receiving Clinic !
Jimmy Joyce (VBF Ex. Asst. Basia Joyce's son) receives
a great pass from Tim Sherwin
Thank You to the Polish Community Center for the use
of their facility for our event !
New Clinic Launched in NC
THANK YOU - LAX ART event raises over $4,000 for VBF
2nd Annual Walk/Run For Birthmarks A Huge Success
VBF Launches 2nd Annual DOA Walk/Run for Birthmarks Challenge
VBF is excited to announce that our 2nd Annual Challenge - Walk/Run for Birthmarks
- will be held on Friday, May 14th, 5:00pm, in Colonie, New York. Last year's
event was a huge success with over 300 attendees. We are optimistic that we
will succeed that total this year.
|Evan before surgery
||Evan after surgery
Our 2010 Walk/Run event is sponsored by Mirkovic, Lambert & Teal, A Financial
Advisory Practice of Ameriprise Financial Services, Inc. We are also proud to
announce that our 2010 Birthmark Champion is Evan, a local child that was networked
into treatment by VBF. Captions under pictures (Evan before surgery, after surgery,
Please join our 5k race/walk teams. You can register on-line by going to the
links below. This event is going to be a time of great family fun. We are going
to have a bouncy bounce, tumbling tykes, face painting, music, food, and vascular
birthmark "Experts" who will be on hand to answer questions for free about the
diagnosis and treatment of hemangiomas and vascular malformations.
We are hoping for 25 "birthmark" teams to walk/run in this year's event. If
you or a loved one has or had a vascular birthmark, put a team together and
join us. Or, put a team together and run on behalf of someone you love who has
or had a vascular birthmark. The 5k race course is a sanctioned course and certificates
will be presented to the standard race category winners. We will also be presenting
a certificate to the largest "birthmark" team.
Bring your friends, family, office, club, and classmates. Everyone is welcome.
If you can't walk or run, volunteer to work at one of our booths. Please help
us to continue to make a positive difference in the lives of families affected
by a vascular birthmark.
VBF Mourns Loss of 1st Volunteer, Charlotte Shannon Gallo
pictured here is Charlotte Shannon Gallo, VBF's First Volunteer, and her granddaughter Christine Shannon at the VBF 2008 Gala in NYC
VBF mourns the loss of its loyal friend and first volunteer, Charlotte Shannon Gallo. Charlotte is the paternal grandmother of Christine Shannon, daughter of VBF President and Founder Dr. Linda Rozell-Shannon and is the mother of Charles Shannon, Christine's father.
Char (as Linda referred to her) helped stuff envelopes, sell raffle tickets, set up and clean up for every local VBF event since 1994. She received the VBF Service Award several years ago and also secured many corporate sponsors for annual fund raisers. Though Char is no longer with us, she continues to support VBF. Her obituary requests that donations may be made to VBF in her memory. She will be missed dearly by her family and her VBF friends. VBF extends its deepest and sincerest sympathy to Char's family and friends.
If you would like to make a donation in her memory follow this link:br>
VBF and Proposed Health Care Plan
1) Position statement from various birthmark support groups
2) Sample letter for you to send to your political representatives
THANK YOU MICHAEL BOLTON for Charity Buzz event benefiting VBF!
VASCULAR BIRTHMARKS FOUNDATION AND
BECKMAN LASER INSTITUTE PRESENT LANDMARK CONFERENCE
The 2009 Port Wine Stain and Vascular Birthmarks Conference was VBF’s
largest conference ever, with more than 300 attendees from around the world
and 25 medical experts. The conference was co-sponsored by Dr. J. Stuart Nelson
of the Beckman Laser Institute and VBF, a global foundation dedicated to helping
families afflicted with vascular birthmarks, tumors or syndromes.
|Anne Comi (VBF SWS Expert) and Mike Steffano, Founder of Birthmarks.com
||Dr. Nelson is pictured with conference attendees
VBF’s Co-Medical Directors, Dr. Stuart Nelson and Dr. Martin Mihm, both
presented ground breaking results from research. Dr. Mihm presented the results
of a study concerning the histopathology of hemangiomas that gives promise to
developing a drug that will prevent them from growing. Dr. Nelson presented
preliminary results of great interest to individuals with port wine stains.
The current study results provide hope for a new combination drug and laser
therapy treatment that will remove port wine stains.
|The day care was full with children with birthmarks. Jennie Legary, VBF
Adult Rep and Director of Musicians with Birthmarks read the Buddy Booby
Book. VBF Adult Rep, Danielle Vlahos, pictured in the front, coordinates
the annual day care center
||Children attending the conference were treated to face-painting by a clown
During the conference, other experts presented the latest findings on research,
diagnoses, and treatments for vascular birthmarks and related syndromes. In
addition to the conference, an informal clinic was held where over 100 appointments
were scheduled and conducted by four different birthmark teams.
|VBF Co-Medical Director Dr. Martin Mihm, VBF President & Founder
Dr. Linda Rozell-Shannon, VBF Co-Medical Director and Conference Co-Sponsor
Dr. Stuart Nelson, and VBF's newest board member (West Coast Liaison), Peggy
||Christine Shannon (daughter of founder/president) and Jenny
Legary (VBF Board Member and Director of Musicians with Birthmarks) sang
for everyone at the Friday welcome reception
The Vascular Birthmarks Foundation celebrated its 15th anniversary at the conference.
We continue to raise money all year to actually pay for the hotels and meals
for families to attend the conference. VBF is the only birthmark organization
that provides free lodging and meals and will also waive all clinic and conference
fees to families who request a waiver based on hardship. Your donations to “Sponsor
a Family” will continue to help us to be able to pay for families to attend
our conference and get a free treatment plan.
VBF also honored Dr. Robert J. Rosen, Co-Director, Division of Peripheral and
Endovascular Intervention at the Lenox Hill Heart and Vascular Institute in
New York, as its Physician of the Year.
Next year’s conference and our bi-annual gala will be held in NYC on
October 8-9, 2010. Dr. Roy Geronemus, of the Laser & Skin Surgery Center
of New York will be the 2010 Mark of Beauty Gala and Vascular Birthmarks Conference
VBF's International Day of Awareness is May 15
It's never too late to register for VBF's International Day of Awareness. Our
annual celebration for Awareness is on May 15, but events can be held at any
time during the year. Click here to register now.
Abby Czirr Physician Education Grant
Physician Education Grant has been established in Memory of Abby Czirr.
The grant will be used to pay for the expenses of a physician to travel
to a multidisciplinary treatment center to learn about the latest
information in the diagnosis and treatment of vascular birthmarks
and tumors. If you are a physician and you are interested in applying
for this grant, please print
the application and mail it to: Dr. Linda Rozell-Shannon, VBF
President/Founder, PO Box 106, Latham, NY, 12110. Include your CV.
Please also list the multidisciplinary treatment centers where you
would like to visit and the dates you would like to visit. You will
also need to provide a letter from the center's director agreeing
to host you for the training period. At the current time, we have
funding for one grant. A committee will select the recipient after
5 applications have been received and reviewed. All recipients will
be notified of the award after the committee has selected the recipient.
Those who are not selected will be encouraged to resubmit for the
next grant cycle. Current grant cycle is January 1 - March 31 each
year. Awards will be made in April. Travel will be expected to commence
between April and October. For more information, contact Dr. Linda
and print the application (pdf)
First Recipient of the VBF Abby Czirr Physician Education Grant Begins Studies with NYC Team
NICH (Non-Involuting Congenital Hemangioma)
Non-Involuting Congenital Hemangiomas are not typical infantile hemangiomas. They are always present at birth and never regress, involute or shrink on their own. Therefore, it is important
that parents know that these lesions must be removed or treated promptly,
especially if they pose a threat to vision. See the series of pictures
below which show the NICH in an ultrasound and even show the baby
squishing the NICH and then pre op and post-op. The surgeries were
done by Dr. Aaron Fay in Boston and a laser treatment was done in
NYC with Dr. Fay and Dr. Waner. The baby's sight was saved and the
ultrasound proved that these rare lesions are fully formed in utero.
|See NICH over baby's right eyebrow
||See NICH and how baby is squishing it with his hand
(like saying "go away")
||Baby before surgery that was done by Dr. Fay
||Baby now after 2nd surgery by Dr. Fay and laser with
(L to R) Christine
Shannon, Dr. Linda Rozell-Shannon, Jimmy Joyce (son of VBF Ex. Asst. Basia
Joyce), and Mike S. lead the parade of over 200 walkers in VBF's first
ever Walk for Birthmarks
VBF's 1st Run Starts with over 100
Team Anna (mother is Basia Joyce VBF's
Ex. Asst and VBF Walk Director) wins award for largest team with over
Team Saige (VBF's student board member
Saige Caveryo) and her Mom (Elysa Baron, also VBF Parent Rep) and their
family come out to show a huge support for Saige
VBF's 2009 Birthmark Champion, Ethan
Watson, has a huge support with Team Ethan
Another large team of walkers with
Team Miller brings huge support for families of children with birthmarks
Winner of Ladies age group (wearing
number 98) and VBF Run Director, Barbara Rothaupt
Three runners (out of over 100) lead
the pack in VBF's first ever 5k Run for Birthmarks
Team Bauman - long time friends of
VBF come out for support
Photos by Chris Milian of www.photosfromonhigh.com
Over 300 walkers/runners turned out for the event and
over $10,000 was raised. Thank you all to everyone who made this event
possible, especially Co-Event Directors Basia Joyce and Barbara Rothaupt.
Also, thank you to our sponsors:
The Center for Facial Plastic Surgery &
University Ear, Nose & Throat of Northeastern New York
and, CORPORATE SPONSORS:
Kohl's Department Store
Joe Condon—Albany Broadcasting
D.J. Tammy LaBrake
Mirkovic, Lambert, and Associates
R.J. McNamara Financial Consultants
Erle Daniels of Race With Us
Fallon Welness Pharmacy
Loudonville Wine & Spirits
Across the Street Pub
Chris Milian, Photographer
A special thanks to the following businesses for their
generous donations: Inferno Pizzeria, TGI Friday’s, Planet Fitness,
Jeepers, CVS, Hoffman’s Playland, and Subway
VBF would also like to thank our PR firm 30Ink for
the outstanding job of generating lots of PR coverage for this event.
up to do a Day of Awareness Event (sign up from the Day of Awareness
Sponsor a Family (online)
Jan and Andrew Dreger, parents of Owen Dreger, along
with JoAnn Campbell (Jan's mom/Owen's grandmother) had a multi-event
VBF Day of Awareness celebration on May 15.
First, Owen's pre-school class participated in the "Buddy
Booby Read-Along". His teacher, Mrs. Darla McNulty, made a puppet
that resembled Buddy to entertain the class. Owen's mom, Jan Dreger,
colored pictures of Buddy with the kids, along with bookmarks that
they took home with them. Afterwards, Owen gave out VBF stickers to
the kids. It was his "special day" because he was born with a special
mark. The entire school was sent home with information about the VBF
and about the Dreger's annual Day of Awareness event at their family's
restaurant, Campbell's Boat House.
at the St. Cornelius school where JoAnn Campbell teaches, her 6th
grade class acted out the Buddy Booby book as a play. The kids did
most of the production tasks, including casting, script, costumes,
props, and sound. JoAnn assigned a producer and director, and they
practiced all week and memorized their lines. The play was performed
4 times throughout the day on Friday, and all grades (pre-K to 8th)
and teachers attended. Owen, his brother Austin, and mom Jan attended
the last performance. After the play, the school presented the Dregers
with two checks totaling $450.00 for VBF! The kids even asked Owen
to sign autographs.
At 4 p.m. the Dregers opened the Boat House restaurant,
and a steady stream of family, friends, and patrons filled the building
all night. They had a wait list for 3 hours! Three families from the
area came with their children who have birthmarks. The Dregers donate
a portion of the proceeds from the night to VBF.
VBF would like to thank the Dregers for all their hard work, and for
their outstanding efforts to raise funds and awareness for vascular
Please let us know about your Day of Awareness event.
Send your event details and pictures to email@example.com
Join Evan and Donna Ducker in the "International Buddy Booby's Birthmark
Read-Along for Tolerance and Awareness" on VBF Day of Awareness, May
15. The Ducker's also made a recent trip to Ireland, where they visited
children with vascular birthmarks at Our Lady's Children's Hospital.
With your help, they continue to "Make a Difference".
Visit the Buddy Booby website to register for this global event and to see
the list of over 70 schools already registered: http://buddyboobysbirthmark.com/_wsn/page5.html
VBF Board Members
VBF Parent Rep Natalie and Treasurer Brian Bolinger
– Texas, October 2009 – Silent Auction and Texas Hold
‘Em – Annual event and largest Day of Awareness fundraiser.
Their daughter Nicole had a hemangioma.
VBF Secretary/SWSC Co-Director - Tiffany Ethington
and son Glen Ethington. Tiffany and Glen have an annual interview
on noon news to raise awareness. Glen has Sturge-Weber syndrome/facial
Port Wine Stain, and organized a newsletter and pen pal group
for kids with birthmarks and their siblings/friends called “Glen’s
Gang”. VBF Chapter Director/SWSC Co-founder Glenda Ethington
also helped organize this annual event.
VBF Executive Assistant Basia Joyce – VBF
Walk/Run organizer. Basia’s daughter Anna had a hemangioma.
VBF Director of Musicians with Birthmarks Jenny
Legary – Jenny is putting on a show in NY. Jenny has port
VBF Parent Rep Danielle Vlahos – Each year
Danielle hosts a “Jeans Day” at her workplace. Danielle’s
son Cole had a hemangioma.
VBF Parent Rep Lianne Chase – Team running
in the VBF Walk/Run in NY. Lianne’s son Cody has a lymphatic
VBF Legal - Barbara Rothaupt – VBF Walk/Run
VBF President Dr. Linda Shannon and daughter
Christine Shannon – VBF Walk/Run organizer. Christine had
a hemangioma on her lip and was the inspiration for the organization
VBF Parent Rep Elysa Baron and her daughter VBF
Student Rep Saige Cavayero – Selling VBF Kids Who Care bracelets
and organizing a team for the VBF Walk/Run. Saige was the inspiration
for the bracelets. She designed them as a fundraiser for the first
VBF Day of Awareness. Glen’s Gang and the VBF Kids Who Care
program used Saige’s original design for adult bracelets
and designed a blue/white swirl bracelet for children. Saige had
extensive facial hemangioma.
Family and Volunteer Events
Donna Ducker and Evan Ducker – International
Event - Buddy Booby Read-Along – Buddy Booby is the mascot
for VBF. Mother and son authored the “Buddy Booby’s
Birthmark” book about a booby bird with PWS. Evan Ducker
has a facial PWS
Lisa Burdick – Saegertown, PA Collection
Allen Stotler – Sunrise, FL - Collection
Box and VBF Starter Kits
Arlin Diaz – Hopelawn, NJ - Collection
Mike Jackson – Newton Centre, MA –
VBF Starter kits
Rita Jones - Grand Saline, TX - Collection Box
Kate Steele – Dekalb, IL – Collection
Box and VBF informational materials - In Honor of Aliyah Steele
Karenina – Advance, NC - in Honor of daughter,
Juliana Grubb – VBF informational materials
Bianca Shemper – Hattiesburg, MS –
Kathy Wyrick – Lake City, FL – Article
in local paper and informational pamphlets
Jan and Andrew Dreger – 3rd annual Awareness
Day Event at family
owned/operated restaurant- Campbell's Boat House in Media, PA.
Percentage of sales donated to VBF
JoAnn Campbell – Media, PA - Buddy Booby
Birthmark Read Along to students at St. Cornelius School. JoAnn
is a teacher in Chadds Ford, PA. Also, video montage shown to
students of grandson Owen Dreger.
Rabbit Hill Nursery School – Springfield,
PA - Buddy Booby Read Along to Owen Dreger's Pre-school class.
Vanessa Beall – Aptos, CA – Collection
Box – In honor of Lillie Nichols
Christine Sylvester – Milwaukee, WI –
postcard and sticker campaign to friends and family
Kathleen Miller – Slingerlands, NY –
Lunch and Learn, collection box – In honor of Camryn Shea
VBF Latin America - Andrea Domingues - São
Paulo, Brazil - Medical Lecture – Each year Andrea hosts
a meeting of People with Hemangioma and Linphangioma Brazil. The
conference is organized by ABRAPHEL, a Brazilian association for
people with Hemangioma and Lynphangioma. Andrea’s daughter,
Gabrielle, has Proteus syndrome.
VBF India - Santo Banerjee – Kolkata, West
Bengal, India – Writing an article in the local newspaper.
Santo’s son, Sumangal, has SWS.
VBF Poland – Ewelina Ochab – plans
Sturge-Weber Syndrome Community (SWSC) –
Lexington, KY - Tiffany and Glen Ethington – Tiffany and
Glen have an annual interview on noon news to raise awareness.
Glen has SWS/PWS and organized a newsletter and pen pal group
for kids with birthmarks and their siblings/friends called “Glen’s
It's never too late to register for the 2009
VBF International Day of Awareness. Our annual celebration
for Awareness is on May 15, but events can be held at any time during
the year. Join these dedicated families in supporting VBF and raising
awareness for vascular birthmarks. Visit the VBF Day of Awareness
website today for more details and to register your event. With your
help, we are making a difference!
Dr. Nelson and Dr. Geronemus Respond to Article on Anesthesia and
An article recently appeared on the Internet which has
caused a tremendous amount of anxiety for the parents of children
receiving anesthesia in conjunction with laser surgery of vascular
malformations. We would like the opportunity to comment on the article.
Since the study was conducted during the period of 1976-1982,
all children likely would have received halothane as the anesthetic
agent. At our institutions, for all infants and young children we
now exclusively use sevoflurane (introduced in the mid-1990's), which
has a much faster on-set and off-set of anesthesia, as compared to
halothane. Moreover, sevoflurane doesn't induce the overall global
body beta blockade (such as slow heart rate), which was a major problem
As pointed out by the authors, subjects included in
the study had a variety of major medical illnesses requiring multiple
complicated surgical procedures, which makes anesthesia much more
problematic. The vast majority of our patients are essentially healthy.
Patients with vascular malformations are only medically cleared for
same day surgery procedures if they are medically stable, thus they
are usually not categorized in the major medical illness category.
The degree of learning disability was most pronounced
in those children undergoing procedures that lasted several hours.
Our procedures are significantly shorter and only performed with an
experienced anesthesia team.
Finally, and most importantly, the study predates the
development and institution in 1984 of pulse oximetry and capnography
which have made all anesthesia procedures much safer due to the ability
to make real-time measurements of blood and lung concentrations of
gases. Undetected brain hypoxia (lack of oxygen) was the most worrisome
complication of anesthesia before pulse oximetry became standard practice.
When children are put under anesthesia at our institutions we constantly
monitor pulse oximetry. Any time the pulse oximeter goes below 90%,
the laser procedure is stopped and our anesthesiologist replaces the
mask and brings the pulse oximeter reading back up to 100%. Capnography,
which measures the amount of carbon dioxide, is an important indicator
of early broncho- or laryngo-spasm or other causes of inadequate ventilation
or gas exchange by the lungs.
In conclusion, safer and shorter acting anesthetics,
shorter time of procedures, treatment of a category of healthier patients
and, most importantly, improved real-time monitoring, has significantly
lowered the risk of complications from anesthesia. Without question,
some of the most dramatic improvements in medicine have been in anesthesia
in general, and pediatric anesthesia in particular. It was regrettable
that it was not pointed out in the article that the anesthetic medications
and technology used for most of the reported cases was more than 30
years old and now obsolete.
We would be happy to speak with you directly regarding
children's individual case at your convenience.
J. Stuart Nelson, M.D., Ph.D., Beckman Laser Institute,
University of California, Irvine
Roy G. Geronemus, M.D., Laser & Skin Surgery Center of New York
First Recipient of the VBF Abby Czirr Physician
Education Grant Begins Studies with NYC Team
Pictured above (from left to right) are Dr. Aaron Fay (eye specialist),
Dr. Milton Waner (world renown vascular birthmarks surgeon), Corey
Tournay (Clinical Coordinator, Vascular Birthmark Institute of NY)
and Dr. Arthur Falk (Abby Czirr Grant Recipient).
Great Day of Awareness Goal- Sponsor a Family
Each year VBF organizes a conference where families can learn about
the latest treatment in vascular birthmarks and tumors. They also receive
a free night lodging and most meals are provided free of cost. If the
family is unable to pay the $50 clinic and $50 conference fees, they
are also waived. VBF pays approximately $500 for each family that attends
our annual conference.
Send this sheet out and distribute
to your friends so that they can also help to sponsor a family.
First Family Scholarship Awarded in Memory of Theresa M. Rozell -
Dr. Linda's Mother - Who Passed Away Suddenly on 12-8-08