Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2014
Celebrating 20 years with
75,000 networked into treatment.
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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




What Our Families Are Saying About Us



 


Before Surgery, After Surgery, Aslynn Brown Today with her twin brothers

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown


 

Thank you so much! The VBF site is such a lifesaver - I had a hard time finding people with knowledge in this area and my pediatrician just recommended the wait and see approach and our family didn't think his hemangioma was an urgent thing to treat, so the VBF site has been an invaluable, timely resource!

Thank you again!
Jessie


 

I just wanted to say thank you to the Vascular Birthmark Foundation, and specifically Dr. Linda for creating such a helpful resource. Not only have I learned so much about my condition through the many resources available here, but I was able to find Dr. Levitin who's been a godsend in helping me when I beginning to feel hopeless. So, thank you VBF.

Mary S.


 


Anli Ji, six months after surgery for an eyelid hemangioma

" Thank you very much for saving my family."


 

Just like to thank you so much.
I have followed you on the webpage since my daughter in 1998 was operated at
Arkansas Childrens Hospital.
Everyhing has grown so big - You are really fantastic!!!
Anita has been operated many times since Arkansas, but you've made the
difference and the possibilities.
Thank you!!
Trine


 

Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina


 

Good Evening Linda,
I am writing tonight to tell you that I would not know what to do if it weren't for your foundation. Our son is 6 months old and has a hemangioma on his forehead, along his hair line. When our pediatrician saw him for the first time when he was two weeks old, (he was 6 weeks premature, so we were in the hospital a bit longer than usual) she pointed it out and told us "This is going to get bigger." We took it with a grain of salt and said "no problem." She reiterated again... "No, I mean this is going to get real big. We'll keep an eye on it." She informed us of what it was and gave us ointments when it ulcerated and has always inspected it thoroughly at each visit.
Since then, it has made me worry, cry, mad, angry and proud all at the same time. Our family doesn't even see it anymore, but strangers seem to point it out all too often. After a negative encounter at a local department store with a rude woman, I spent a few hours on the internet searching for answers and came across this site. Since then, we have received great info and encouragement from Dr. Levitin and Elissa and parents on the discussion forum.
We still have many things to learn, and we are hoping to get an appointment in the near future with one of the physicians listed on the website. Until then, thank you for your hard work and dedication. You truly are an angel.
God Bless,
Melissa, Florida


 

My daughter, Allison had a similar hemangioma forming just like Linda Rozell's daughter. Her statement that she missed the window to get her daughter to the doctor and put on steroids, made me pursue my daughter's vigilantly. Thanks to her story and her wonderful website, she has helped my daughter so much. I am forever grateful for her telling her story of her beautiful daughter. I tell my daughter's story often to help others in a similar situation and just for education purposes. I look forward to giving the jewelry out as gifts and wearing my own set and telling the story of where they came from and why we purchased them. So, THANK YOU so much!!!!!!!!!!
Cheryl


 

I just wanted to thank you for all your hard work.
Parents like myself are so appreciative and grateful for your dedication. I will let you know how the surgery goes when we get back. We are blessed to have this opportunity.
Joelle, California


 

I was a very worried mother in Brazil. My daughter had an hemangioma above her left eye, and all the "great" phisicians in Sao Paulo said "wait, it will go away", "there is nothing we could do.. No, we do not make any surgeries in her case"... Gosh!

 

The pain I felt in my heart everytime someone asked what was it, and my sweetie got upset and embarassed, it was like having my heart taken away. I could give my arm in exchange of having this hemangioma removed from my baby.

 

One day, I found in youtube a video from a grandmother exposing her grandaughter's problem with hemangioma and she indicated birthmarks.org. That's how I knew about Dr. Zacharias Calil. Five months later, Aug 08, Jamille, my 4 years old princess, had her hemangioma successfully removed. Today, she is another child, happier, shinny kid.

 

Dr. Calil was amazing, he is a wonderful professional and a human being. I would like to thank you all, as now I see that I was not the only mother worried about having to "wait". The psycological marks would never gone away. These were my biggest concerns.

 

Thank you, Dr. Linda. God bless you all and your families.

 

Love,
Fernanda, Brazil


 

In Memory


The family of VBF would like to express our sincerest sympathy to the family of Libby Arlene Kettel, 50, of Issaquah, Washington. Libby passed away recently. She was a good friend and faithful supporter of VBF. Libby raised hundreds of dollars in memory of her brother Harley Fisher, who passed away many years ago. Please accept our sincerest condolences.