Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




History


Christine before surgery
Christine at 18 months.
Christine after surgery
Christine at 22 months, 3 months after surgery.
Christine at 7
Christine in 2009, aged 15.

 

One in ten children are born with a vascular birthmark, or 400,000, each year in the United States (based on the 2003 census). Of these infants, 1 in 10, or 40,000 are born with a vascular birthmark that will require the opinion of a medical specialist. There are two categories of vascular birthmarks: hemangiomas, which are the most common tumor of infancy, and vascular malformations. These two categories, while related, are very different. It is very important to know the difference because the treatment is different depending on the lesion type.

 

Traditional medical protocol in years past was to allow these potentially disfiguring and dangerous lesions to grow and "wait" for regression or involution to occur. New data indicates that most of these lesions do not regress to a cosmetically acceptable appearance, and will, therefore, require some form of corrective surgery. As a result, there is a concerted effort on the part of several prominent physicians and research specialists to change the old "benign neglect" protocol to require more aggressive early intervention. Additionally, almost all benign vascular lesions have been called "hemangiomas." However, many are actually vascular malformations. It is important to have an accurate diagnosis since hemangiomas will regress but vascular malformations will continue to grow. This web site is dedicated to provide the most accurate and up to date information on the proper diagnosis and treatment of hemangiomas and other vascular birthmarks. This information is not only important for parents, it is critical for physicians and other health care providers.

 

Dr. Linda Rozell Shannon is the President and Founder of the Vascular Birthmarks Foundation. She has her Phd in Education, her Masters of Science degree in Health Education and has been a freelance writer and analyst for over 25 years. In 1994, after her daughter, Christine Mary Shannon, was diagnosed with a hemangioma in 1994, Linda began researching and writing information on vascular birthmarks. In 1995, Linda learned about Dr. Milton Waner, and his work at Arkansas Children's Hospital. After he successfully removed her daughter's hemangioma in one 3 hour out- patient surgical procedure, she teamed up with Dr. Warner, Associate Professor of Otolaryngology, Head and Neck Surgery at the University of Arkansas Medical School (currently (2005) at the Birthmark Institute at the Beth Israel Hospital in NYC) to write the one and only book for parents on birthmarks. Today, Dr. Waner is an internationally recognized authority on the diagnosis and treatment of hemangiomas and vascular malformations. He has successfully treated thousands of child and adults with vascular birthmarks. Since its inception in 1994, VBF has successfully networked thousands of children and adults into treatment, sponsored significant research, educated physicians and affected family members about the diagnosis and treatment of vascular birthmarks and has established chapters all over the world.

 

Presentation with VBF's History (Power Point)